Tag Archives: Physical Disabilities

Applied Behavior Analysis ABA – Revisiting SPC Episode 15

Applied Behavior Analysis. ABA.

In January of 2014 we posted episode 15 of Special Parents Confidential, in which we learned about Applied Behavior Analysis ABA. Our guest was Conny Raaymakers, who is a board certified behavior analyst. Her interview has become our most downloaded and listened to episode, with nearly double the listens of any other episode we’ve done. It’s even been cited in a text book on applied behavior analysis.

What Is ABA?

Applied Behavior Analysis or ABA is a term parents of special needs children hear a lot in schools, doctors offices, therapy centers, and just about anywhere our kids interact with people. Studies have shown that ABA can be used to help children as early as 18 months learn to cope with everything from social settings to the educational environment. ABA has been proven to be successful especially for children with autism and can be used to help kids with other disabilities and disorders.

New Contact Information.

However, since that interview took place, Conny has had some changes in her career. She is now the Director of ABA services at Developmental Enhancement Behavioral Health. Conny is a Behavior Analyst and Limited Licensed Behavioral Psychologist.  She talks about the history of Behavior Modification, the decades of research that has been done to study the effectiveness of the treatments, and clears up the misconceptions people have about Applied Behavior Analysis. Conny also discusses the drawbacks and problems with using alternative or ‘fad’ treatments, how to watch out for misleading claims and how to spot phony success stories.

Updated Links & Information

Developmental Enhancement Behavioral Health

Conny Raaymakers Profile Page

Email: craaymakers@debh.org 

Association for Behavior Analysis International

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Special Parents Confidential 54 Neurocore and the Education Secretary

Neurocore and the Education Secretary

The new Eduction Secretary of the United States has caused some controversy in the past months since her appointment over her views on special education, and her financial ties to a company called Neurocore. Specifically, she seems to have no interest in special education at all. Indeed, one of the first actions that took place after her appointment was the removal of all special education information from the Department of Education website. That information has since been restored, but it is still troubling. It should also be noted that this is the first time ever that an entire section of the United States Education Department’s website was deleted and only restored after public outcry. While it was claimed that there had been a simple mistake during the transition from one administration to another, many were quick to point out that this had never happened before in the entire history of the department during either administrative transitions, or otherwise.

Education and Special Education?

Further troubling is that Betsy DeVos’ only answer to any questions about the future of education in America, including special education, is to state her belief that, “parents have the right to choose what school they want their kids to attend”, and that, “states have the right to decide what that education will be”. Seemingly, without any federal government oversight. If that is truly the case, where does that leave special education, and the oversight of IDEA – the Individuals with Disabilities Education Act, that was implemented by Congress in 1991 and has been administered by the Education Department in since then?

What Is Neurocore?

During her confirmation hearings it was revealed that Mrs. DeVos and her family are the majority owners of Neurocore – a brain training program that has been hyped as a way for people with learning challenges to succeed. (They are also majority shareholders in several for-profit Charter School corporations, which we addressed in SPC Episode 43 with Kristen Totten of the Michigan ACLU.)

Our Guest: Ulrich Boser

Back in May of this year an article appeared in the Washington Post, written by our guest for this episode, Ulrich Boser. He investigated Neurocore, went to one of the Neurocore Centers to have an exam done, and checked out their findings with medical doctors and education experts. He talks about the concerns about Neurocore’s claims of success, and the problems caused by Mrs. DeVos’ financial ties to the company.

Links Mentioned in the Podcast:

Ulrich Boser’s Website and Blog

Ulrich Boser’s profile at the Center for American Progress

The article about Neurocore in the Washington Post 

Learn Better – The book about how we learn, mentioned in the podcast 

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Special Parents Confidential 53 be nice campaign.

be nice. 

A new program called the ‘be nice’ campaign has been started in West Michigan to help end bullying. One of the hardest issues to deal with for parents of special needs kids – as well as parents of any child – is bullying in schools and online. What do you do if your child is the victim of bullying? For that matter, what do you do if you discover your child is bullying other children?How far does bullying affect a child? What kinds of impact does this have on a child’s mental health? 

Learn About Mental Health.

Did you know that problems with bullying are the leading cause of suicide in children and teenagers? Bullying can also cause issues of depression, drug abuse, and other mental health problems that can affect people for their entire lives.

In this episode we’re going to talk to an expert in the subject of bullying. Christy Buck is the executive director of the Mental Health Foundation of West Michigan, and they have a new program that offers a solution. It’s called the ‘be nice’ campaign and it’s designed to to help kids, families, schools, and communities work to understand and end bullying. We’ll also learn about mental illnesses, how to recognize when problems escalate to thoughts of suicide and what to do in these situations.

We also talk about the common myths and stigmas associated with bullying, depression, and mental health issues that can cause problems for kids as well as adults. For example, a person doesn’t need to ‘bottom out’ before they should get help. We discuss ways to overcome these myths and stigmas.  You’ll also learn how the ‘be nice’ campaign can be used by your school or other organizations.

Links Mentioned in the Podcast.

be nice. campaign official website

The Mental Health Foundation of West Michigan 

National Suicide Prevention Lifeline (website)

National Suicide Prevention Hotline: 1-800-273-8255.

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Special Parents Confidential 52 Ponseti Method of Clubfoot Treatment

Ponseti Method of Clubfoot Treatment

Clubfoot, or talipes equinovarus, is a treatable birth defect that affects approximately 150,000-200,000 children each year. When clubfoot occurs the foot is twisted inward and down. For decades the standard treatment for clubfoot consisted of performing radical surgery on the tendons and bones of an infant’s feet.

In the mid 1940s, Dr. Ignacio Ponseti, an orthopedic surgeon at the University of Iowa, began reviewing the results of the surgical treatments of clubfoot that were commonly used at the time. His findings were not encouraging. He discovered that, in adulthood, former surgical patients often experienced foot stiffness, pain, arthritis, and limited mobility, and in many cases required additional surgery.

The Ponseti Method.

By studying the anatomy and functions of a baby’s foot, Dr. Ponseti developed a non-surgical method to correct clubfoot in infants through gentle manipulation of the feet followed by the application of plaster casts. In 1948, Dr. Ponseti began using what has now become known as the Ponseti Method of clubfoot treatment. 

Our guest for this episode has a great deal of experience with the Ponseti Method of clubfoot treatment. Dr. Jose Morcuende is a professor of orthopedic surgeries at the Ponseti Clubfoot Clinic at the University of Iowa Children’s Hospitals. 

Dr. Morcuende trained directly with Dr. Ponseti and has helped to promote the Ponseti Method around the world through the Ponseti International Association, of which he is the President at CEO. He talks about working with Dr. Ponseti, how clubfoot affects children born with it, and the success rate of the Ponseti Method. Dr. Morcuende also talks about the mission of the Ponseti International Association, and the importance of finding a doctor who has been fully trained in the Ponseti Method.

Links Mentioned In This Podcast.

Clubfoot – University of Iowa Stead Family Children’s Hospital 

Ponseti International Association 

To Parents of Children Born With Clubfeet – Article written for parents by the late Dr. Ponseti explaining his method of treatment.

Glossary of Terms From Ponseti International Association – Glossary of some of the common medical terms used by doctors when treating clubfoot.

Special Parents Confidential 51 Michigan Alliance For Families

Michigan Alliance For Families.

Find out how the Michigan Alliance For Families, and other similar organizations around the United States can help you negotiate special education services for free.

What Is The Michigan Alliance For Families?

Trying to get help with the special education process can be very difficult, and potentially expensive. There are dozens of advocacy service businesses and legal firms that specialize in handling IEPS for families. There are hundreds of books you can buy. Seminars you can attend. Personal counseling services. The list goes on.

But did you know that some of the best help for negotiating special education services is available for free from your own State government? Every State in America has what’s known as Parent Information and Training Centers that offer help in everything from early intervention, to writing an IEP, to legal support, transitioning issues, and beyond.

Free Is A Nice Price.

Here in Michigan, the Parent Center is called the Michigan Alliance For Families. They offer parent-mentors… these are parents of special needs children… who have been trained to coach other parents to work with schools and get the help that their children need.

Our guest for this episode is Kelly Orginski, who is the executive director of the Michigan Alliance For Families. She explains how the Michigan Alliance came together, how the parent-mentors are trained and work with families, and how they can help. She also talks about what parents can do to help themselves with the negotiations, and where to find help from similar organizations in other States.

Links Mentioned In This Podcast

Michigan Alliance For Families 

Center For Parent Information and Resources – National parent information center site.

Find Your Parent Center – Directory from the Parent Information and Resources website that links to all State Parent Information Centers.

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Early Intervention – Revisiting Special Parents Confidential Episode 25

Early Intervention – Revisiting Special Parents Confidential Episode 25.

It’s IEP Season and we’re looking back on older episodes that deal with Individualized Education Plans. Early Intervention is one of the first terms that parents hear when they are trying to find help for their children. We talk to an early intervention coordinator to learn about the process.

Early Intervention.

There’s probably nothing more nerve-wracking and stressful for any parent than the realization that your new baby, your toddler, your child might have some problems. Whether it’s not speaking, not walking, or not engaging socially like other kids, the hardest question many parents face is, what do I do about this?

Of course friends and relatives will tell you, oh it’s alright, that’s just how some boys or some girls are… and they’ll grow out of it. But that’s not always the best advice, and if  your child does have a developmental delay or a learning disorder, they are simply not going to grow out of it. They need help. And then the question becomes, where do I get that help?

Our guest on this episode of Special Parents Confidential can answer a lot of those questions. Barbara Corbin is the Early On Coordinator with the Kent Intermediate School District in Kent County, Michigan.  She handles Early Intervention, and Early Childhood Special Education with school districts. She helps parents get their first diagnosis and coordinates getting help for children right at the very beginning. Thanks to advances in medical research and therapies, children can be diagnosed very early, and Early On programs can start at age two.

Links to websites mentioned in the podcast:

1800EarlyOn Early Intervention information for Michigan, with links to other States. The website name is also their toll free phone number: 1 800 Early On.

The Arc of Kent County Information resource for people with intellectual and developmental delays.

Center For Disease Control (CDC) Page for Parents and Infants This page has the Milestones and Schedules information to track expected progress for infants and toddlers.

Great Starts Collaborative Early Intervention Page Success Starts Early’s webpage on Early Interventions. The entire site is full of helpful information for all parents.

Pathways.org  Free online resource and tools for parents.

The Early Childhood Technical Assistance Center Online resource tools for families of children with special needs.

Michigan Alliance for Families.  Provides information, support, and education for families who have children (birth through 26 years of age) who receive (or may be eligible to receive) special education services.

Revisiting Special Parents Confidential Episode 06 Special Education Advocacy

Revisiting Special Parents Confidential Episode 06 Special Education Advocacy.

It’s IEP Season and we’re revisiting older episodes that offered information to help with the IEP process. Today we’re Revisiting Special Parents Confidential 06 Special Education Advocacy. Learn about the role of the Special Education Advocate and how they help parents negotiate the Individualized Education Plan, as well as the 504 Special Education Plan, and what the difference is between these two options.

Special Education Advocacy.

As parents of special needs children we hope that our kids will have every opportunity to get a good education, and get assistance when they need it in school. Special Education has changed over the past couple of decades. Special needs children are spending more time in mainstream classrooms and spending only limited time out of the class with their special education teachers for whatever assistance they need.

But what exactly is Special Education? We know that our kids are supposed to get help. Where can we get good advice or assistance when facing the task of getting the educational help for our special needs children? Do we have to see a lawyer? Can we just expect the school to handle it properly? What are the standards? What’s an “IEP” (Individual Education Program), what’s a “504”, and what kind of educational help can we even reasonably expect our children to have in the first place?

Our guest on this episode of Special Parents Confidential can answer a lot of those questions. Kathy Holkeboer is a Special Education Advocate in West Michigan. Advocates for Special Education work with families on understanding what kinds of educational assistance their special needs children are entitled to have, based on need.  They can even go with the parents to meet with school officials to put the special education plan in place for each school year.

Links To Websites Mentioned In This Podcast

Pacer Center The National Parent Training and Information Center for children with disabilities. They offer publications, workshops, and other resources to help parents make decisions about education, vocational training, employment, and other services for children with special needs.

Parent Technical Assistance Center Network Directory of regional (State by State) special education advocacy centers for parents of special needs children.

Michigan Alliance for Families Special Education Advocacy for families in Michigan. Note: for non- Michigan residents, you can search similar websites for your state in the PTAC directory.

Wright’s Law Special Education Law and Advocacy, created by two lawyers, Peter and Pam Wright (husband and wife), providing legal assistance and information for parents of special needs children.

Contact Information for Kathy Holkeboer – (note: Kathy is a special education advocate in the State of Michigan, and works primarily in the West Michigan region. Residents of other States or regions in Michigan should consult the PTAC directory for Special Ed Advocates in their area). Holkeboer Advocacy -Facebook page.