Tag Archives: Physical Disabilities

Special Parents Confidential 68 The Pushy Lawyer

The Pushy Lawyer.

Meet Kelley Simoneaux, aka, The Pushy Lawyer.

Some people go into disability advocacy and disability law because they feel compelled to help serve in a community that has many areas that need representation.

Then there’s Kelley Simoneaux, who’s known as The Pushy Lawyer. Kelley suffered a spinal injury in a car accident at age 16. The accident left her a paraplegic and confined to a wheelchair. But she decided to dedicate her life since then to becoming a lawyer, specializing in product safety law, and spinal injury law. She has also been quite an advocate for disability rights and accessibility laws, due to her own experiences in law school and in her career as a lawyer.

From Injury To Advocacy.

Using her nickname, The Pushy Lawyer (inspired by her use of a wheelchair), Kelley has made a difference, and not just in the areas of law that she specializes in. She’s even made a difference in the way courtrooms are run, and designed. As she says at the very beginning of her career, a judge couldn’t understand why she did not rise when he entered the courtroom as all the other people had done. Just by being in court, she’s been able to raise awareness of those with disabilities and special needs virtually every day.

Where’s The Access?

When Kelley was starting out in her legal career, many courtrooms and government buildings didn’t have adequate access. This caused problems for persons in wheelchairs, or on crutches, or even using walkers.  Through her work, and primarily without having to file legal action, the court system in several states began to rethink and redo their designs to allow for greater accessibility. Not just for lawyers, either, but also for plaintiffs and defendants, and even jurors and the public. Being the Pushy Lawyer has helped her inspire improvements, and, as you’ll learn, more still needs to be done.

LinksK

Kelley Simoneaux Email

 Twitter feed For The Pushy Lawyer

Kelley Simomneaux on Instagram

News Report on Kelley’s Uber situation

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Special Parents Confidential 65 Growing Roots

Growing Roots.

Growing Roots is a new program in West Michigan that’s introducing therapeutic farming. We al know that getting your hands in the soil can help you relax. You get a feeling of accomplishment and it helps to relieve stress.  The same thing holds true with caring for animals, whether it’s a pet or a farm animal of some kind.

Back To The Farm.

In the past few years more studies are showing that agriculture therapy and animal care therapy can offer tremendous help for people with physical and developmental disabilities. Growing Roots is all about taking these concepts to the next level.

Hands-On Therapy.

Here in West Michigan where we live, two women are trying to create a sustainable therapeutic farming program called Growing Roots. Jessica Roost and Sarah Baker are joining me on this episode to talk about how they’re getting their program started and their goal, which is to have a fully operational farm with a live-in residency program.

Accomplishment and Achievement.

Growing Roots is going to help provide a sense of achievement, accomplishment, and responsibility that will be a tremendous benefit.

Links Mentioned In The Episode

GROWING ROOTS – Link to their main page.

Growing Roots Get Involved – How to help out.

Facebook Page for Growing Roots Kent County, MI  

How Does Nature Impact Our Wellbeing? – Article from the University of Minnesota.

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Please help spread the word about Special Parents Confidential. Use the social media buttons located on this page to post our podcast to all of your favorite social media platforms.

A great way to get in touch with us and comment about episodes you’ve listen to is on our Facebook Page. Please “like” the page and tell us what you think. You can even suggest topics for upcoming episodes and ask questions about previous shows.

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Thanks for your support!

Special Parents Confidential 64 5p Syndrome aka Cri du Chat

5p Syndrome aka Cri du Chat.

Cri du Chat, aka 5p Syndrome is a chromosomal deletion disorder resulting in a wide spectrum of intellectual and developmental abilities. Each year in the United States, approximately 50 to 60 children are born with Cri du Chat, or 5p Syndrome. These individuals will likely need a lifetime of support. Parents who have children born with this rare disability are usually given a very grim prognosis. In many cases they are told that their child will never speak, never walk, and not be able to accomplish much of anything.

Defying Expectations.

But, as often is the case, many children with Cri du Chat go on to have remarkable breakthroughs and are able to overcome a lot of these challenges. New therapies and treatments along with improved technology has allowed many kids to exceed and succeed far better than anyone expected.

Loving You Big 

Like most people, I was unaware of Cri du Chat, until I was contacted by Leah Moore, who writes the blog, Loving You Big. Her daughter Jordan, now age 7, was born with Cri du Chat, and Leah’s blog has some remarkable stories of how her family’s life goes on with a child who has such challenges, but also such amazing gifts. Leah is a high school English teacher in the New York City area, and can’t help but find the irony of her life, as she says, “in love with words”, yet now faced with a daughter who struggles so hard to speak. She also talks about coping with her emotions and that she now also has two twin sons who bring their own set of issues. It’s a story that many parents of special needs kids can relate to.

Links mentioned in the podcast:

Leah’s 3 favorite posts from her blog:

The Irony of Language 

Yes My Hands Are Full.

Welcome To The World, Baby Girl.

Video of Leah and her husband Zac, and their daughter Jordan.

Resources:

5p Minus Society. 

The Danger of a Single Story – Ted Talk by Chimamanda Ngozi Adichie.  

Reminder.

Please help spread the word about Special Parents Confidential. Use the social media buttons located on this page to post our podcast to all of your favorite social media platforms.

A great way to get in touch with us and comment about episodes you’ve listen to is on our Facebook Page. Please “like” the page and tell us what you think. You can even suggest topics for upcoming episodes and ask questions about previous shows.

Special Parents Confidential is now available on Spotify! Just follow the link here to subscribe to our podcast for free.

Thanks for your support!

Special Parents Confidential Episode 62 Lori’s Voice

Lori’s Voice.

We’re introducing you to Lori and Dave Hastings, and their organization, Lori’s Voice. As any parent of a special needs child can tell you, money is one of the biggest challenges. It seems that everything involving your child requires large amounts of money. Medical treatments, therapies, additional equipment, travel expenses, the list can seem endless. The real problem is medical insurance doesn’t always pay for much of these expenses. 

Financial Help In Difficult Times.

Lori’s Voice is a new kind of organization whose sole purpose is to provide funding for those expenses. They get donations and sponsor fundraisers to raise money so that they can help families pay for whatever they need. From their website: “The Purpose of Lori’s Voice is to Provide Equipment, Educational Services, and Medical Assistance to Children With Neuromuscular, Degenerative Diseases, and Mobility Issues.”

They’ve Never Done Anything Like It Before.

Lori and Dave Hastings never ran any kind of a foundation or charity organization before. Yet, they didn’t let that keep them from trying. By founding Lori’s Voice, they’ve been able to help dozens of families. Lori talks about her very personal motivation for getting involved in this work, and how others can start similar organizations. You’ll also learn how you can donate and help. Although Lori’s Voice is located in, and focuses primarily on West Michigan, others can make it happen anywhere.

Links Mentioned In The Podcast

Lori’s Voice Website

Lori’s Voice Facebook Page

Lori’s Voice Twitter Feed

Connect With SPC On Facebook!

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Thanks for your support!

Special Parents Confidential 60 Military Families

Military Families.

This episode of Special Parents Confidential is devoted to Military Families with special needs kids. Parents of children with special needs know first hand how challenging any situation can be from starting school, to getting the kinds of medical and therapeutic help their kids need, to just social life in general. Now add to that situation that every year or two you and your family might get uprooted and moved to another State, or even overseas. That’s the life for military families with a special needs child. Can you still get the same services in your next location that you were able to get for your child where you currently reside? What about Medical needs? Language problems? Education supports? Therapies?

Okinawa, Hawaii, Virginia…

Our guest for this episode, Catherine Lochner, has a lot of experience in this area. Neither she or her husband were actually in the military, but the company her husband works for contracts with the military and they lived on bases with other military families, as part of his career requirements. Their son, Cameron, was diagnosed with a rare brain tumor in 2000, and they have had to do everything from flying across the world to get emergency surgery, to dealing with special education services in the Department of Defense’s Education system, and relocating several times while all this was going on. She now works as a special needs and special education advocate in the Commonwealth of Virginia. 

DODEA and Special Education Supports Around The World

Military families have tremendous challenges, even when everything is typical. Having a special needs child in the military is still challenging, but the Department of Defense Education Activity has some excellent supports for those parents. You’ll hear exactly what our military does for families with special needs kids and how things have improved in just the twenty some years since Catherine’s son was born.

Connect With Us On Facebook!

A great way for you to stay in touch with me and communicate your thoughts on these episodes is on the facebook page for Special Parents Confidential. Use the Facebook button on the right side of this website, or the button at the bottom of this text, or use this link. You can also search Special Parents Confidential on Facebook. It’s also a great way to share our podcast with everyone you know.

Links Mentioned In The Podcast

Military OneSource – Go-To site for 24/7 support for Military Personnel.

 Special Education Parent Handbook Curriculum – Department of Defense Education Activity

DDESS-DODEA – Department of Defense Education Activity – Americas

National Military Family Association – Resources and supports for Military Families

Also be sure to look up special needs support groups such as Parent Training Centers in your area throughout the United States, as well as your local PTA or PTO.

 

Special Parents Confidential 59 Parent Stories 03

Parent Stories 03

We continue our new series of episodes dedicated to Parent Stories – real life experiences raising a child with special needs.

When I first started doing these podcast episodes, my goal was to provide two things – answers and advice from experts on many subjects of concern to parents of special needs kids, and stories of experience from other parents of special needs kids. I wanted to re-create some of the support group meetings I’ve attended where we would hear from an expert and the the parents would get to talk. Hearing parent stories can help because we all seem to do better when we know we’re not alone.

Of course, when the episodes started I mostly began finding lots of professionals willing to talk about their areas of expertise that could help all of us with our kids. And the parent stories idea has kind of taken a backseat to those episodes on advice.

Every Kind of Special Need

These episodes are going to return to the second goal. We’ll hear from parents who’s kids are either still in school, or recently graduated from school. Parents who have worked for and fought for their kids, parents who have struggled and may still be struggling, or parents who have somehow gotten through. They may not have always gotten exactly the help they wanted for their child, but they were able to get  the best they could and their kids are either on their way toward independence or already there.

The first two Parent Stories episodes dealt with parents of children with Autism, largely because I knew those two parents. But my goal is to have parents of kids with every kind of special need talk about their experiences. For that matter, I’d like to also include adults with special needs who want to talk about their lives and experiences. 

Welcome Jenny Moo

In this episode, we hear from another parent I know, Jenny Moo. Her daughter Calla was born with Cerebral Palsy, and was also diagnosed with epilepsy. Jenny talks about the treatments Calla received at birth, a cooling cap technique, that helped to minimize some of the affects of the CP, and the struggles that Calla still has to this day. She also talks about the difficulties with epilepsy, the special education supports that Calla gets, and some of the difficulties she’s had with health insurance. Jenny also talks about the new outlook on special needs and special education she experienced both as a parent, and in a class she took when she began working on renewing her teaching career.

Connect With Us On Facebook!

A great way for you to stay in touch with me and communicate your thoughts on these episodes is on the facebook page for Special Parents Confidential. Use the Facebook button on the right side of this website, or the button at the bottom of this text, or use this link. You can also search Special Parents Confidential on Facebook. It’s also a great way to share our podcast with everyone you know.

Helpful Links:

Cerebral Palsy Guide – U.S. based online support group and advocacy site.

Cerebral Palsy: Hope Through Research – from the NIH National Institute of Neurological Disorders and Stroke – fully updated research information from the National Institute of Health.

Epilepsy Foundation – U.S. based online information and resource guide website.

Epilepsy Information Page – from the NIH National Institute of Neurological Disorders and Stroke – fully updated research information from the National Institute of Health.

Head Cooling May Help Babies With Brain Damage – Article from WebMD.

Special Parents Confidential Episode 57 Parent Stories 02

Special Parents Confidential 57 Parent Stories 02

We continue our new series of episodes dedicated to Parent Stories – real life experiences raising a child with special needs.

When I first started doing these podcast episodes, my goal was to provide two things – answers and advice from experts on many subjects of concern to parents of special needs kids, and stories of experience from other parents of special needs kids. I wanted to re-create some of the support group meetings I’ve attended where we would hear from an expert and the the parents would get to talk. Hearing parent stories can help because we all seem to do better when we know we’re not alone.

Of course, when the episodes started I mostly began finding lots of professionals willing to talk about their areas of expertise that could help all of us with our kids. And the parent stories idea has kind of taken a backseat to those episodes on advice.

We Really Are All In This Together.

Well starting with this episode, we’re going to feature parent stories. We’ll hear from parents who’s kids are either still in school, or recently graduated from school. Parents who have worked for and fought for their kids, parents who have struggled and may still be struggling, or parents who have somehow gotten through. They may not have always gotten exactly the help they wanted for their child, but they were able to get  the best they could and their kids are either on their way toward independence or already there.

We’re giving these episodes the designation, Special Parents Confidential Parent Stories, so that you’ll know that they’re different from the regular episodes. But I think you’ll find yourself learning as much from these stories as you do from our expert interviews.

Welcome Sandy Carlson

In this episode we hear from Sandy Carlson. She and her husband Steve have three boys, the oldest of which is Harrison, who has autism. Harrison is now in his 20s and has a full time job, but as you’ll hear from Sandy, they didn’t really know anything about what to expect for his future. Not much was known about the future for children with autism, even just 20 years ago, and the improvements that have come since then have made a real difference.

Connect With Us On Facebook!

A great way for you to stay in touch with me and communicate your thoughts on these episodes is on the facebook page for Special Parents Confidential. Use the Facebook button on the right side of this website, or the button at the bottom of this text, or use this link. You can also search Special Parents Confidential on Facebook. It’s also a great way to share our podcast with everyone you know.

Special Parents Confidential Episode 55 Collaborative & Proactive Solutions

Collaborative & Proactive Solutions.

In this episode we’re taking a look at Collaborative & Proactive Solutions, which was developed by Dr. Ross Greene and his Foundation, Lives In The Balance. Child behavior problems are always a concern for parents, and sometimes it can seem for parents of special needs kids that the behavior concern is a constant problem.

Punishments and Discipline Don’t Work. 

For as long as anyone can remember, the basic correction method for misbehavior was centered on punishment and discipline. However, that model often fails miserably, and we know this is true, because it’s evidenced by the fact that we have so many prisons full of the results of that failure. So why do we keep enforcing a system that doesn’t work?

Treating Causes Instead of Symptoms.

Over the past few decades a new model of behavior, called Collaborative and Proactive Solutions, or CPS, has been developed with a much greater rate of success. This model was founded by Dr. Ross Greene, who, while on the faculty of Harvard Medical School, began to take a different look at kids with behavior problems. 

Collaborative & Proactive Solutions.

From his organization’s website, Lives In The Balance: The model is based on the premise that challenging behavior occurs when the expectations being placed on a kid exceed the kid’s capacity to respond adaptively, and that some kids are lacking the skills to handle certain demands and expectations. So the emphasis of the model isn’t on kids’ challenging behavior, which is just the manner in which they are expressing the fact that there are expectations they’re having difficulty meeting. Nor does the model focus on psychiatric diagnoses, which are simply categories of challenging behaviors. Rather, the model focuses on identifying the skills the kid is lacking and the expectations he or she is having difficulty meeting.

To tell us more about how the Collaborative and Proactive Solutions model works and why it works, we’re being joined by Kim Hopkins who is the Director of Outreach for the official Collaborative and Proactive Solutions Foundation, Lives In The Balance.

Links Mentioned In The Episode

Lives In The Balance – the Official Foundation of Dr. Ross Greene

Lives In The Balance Facebook Groups 

Lives In The Balance Radio Programs

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Down Syndrome – Revisiting Special Parents Confidential Episode 34

Down Syndrome.

Recently Gerber Foods announced their first ever “Gerber Baby” who has Down Syndrome. In honor of this great milestone, we are taking a look back at Special Parents Confidential Episode 34. 

Down Syndrome. Myths and Facts.

Down Syndrome is one of the most well known of all disorders and disabilities. The common facial characteristics, along with certain physical challenges make the disorder easy to recognize. Yet, for all the familiarity, most people know very little about it and how it affects those who have the disorder.

“What We Know” Is Likely Wrong

Despite many years of progress and improvements in medical research of it’s causes, most of “what we know” about Down Syndrome is rooted in beliefs that are out of date by many decades. Often, parents who’s child has been given a diagnosis are told to expect a very bleak future, with many medical challenges, along with physical and cognitive difficulties for their child. While that can be true to a certain extent, in most cases the future for someone with it is nowhere near as bad as some people believe.

Factual Information.

Fortunately many organizations across the United States, and around the world, have come out to help parents, families, educators, and even the medical community gain a better understanding of Down Syndrome and how it affects those who have it. One such organization is the Down Syndrome Association of West Michigan

We’re pleased to interview Meredith Lange, Community Relations Specialist of DSAWM, who talks about the common misconceptions and provides the facts. She also talks about what life is like for children and adults with Down Syndrome and how most of the misunderstandings cause more harm than good. People with Down Syndrome can do well in school, can have successful careers, even becoming business owners and executives.

Links to Websites mentioned in the podcast:

National Down Syndrome Society 

National Down Syndrome Congress 

Down Syndrome Affiliates in Action 

Global Down Syndrome Foundation 

As always a reminder that if you like this episode of Special Parents Confidential or any episode we’ve done, please share our site with your friends, family, and all your connections on social media. You can do this easily with the social media buttons located right below this paragraph. 
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Three SPC Episodes About Child Illnesses.

Child Illnesses.

The 2017-2018 Cold and Flu season is well underway. News headlines from all over claim this year’s flu is the worst yet. For any parent, child illnesses can be very traumatic. Dealing with sick kids while trying to juggle your career schedule can be a nightmare in and of itself.

The Doctor’s Advice

Last year we posted three different episode interviews with our friend Dr. Patricia Schultz, an emergency medicine trained physician.  After finishing residency and practicing in the ER for a few years, she found her real passion was utilizing her medical training to help patients and families get the best medical care possible. She also taught medical students how to perform to the best of their abilities while having the utmost empathy, respect and compassion for their patients.  Dr. Schultz is currently a healthcare consultant in the private sector, and is working on writing her second book. She is also personal friend of our family.

Click on the links below to access each episode.

Special Parents Confidential Episode 48 Colds and The Flu and Your Child 

It seems like every year the season for colds and the flu gets longer. Whether you’re a parent of a special needs child or not, our kids are coming down with colds and the flu all year round – for that matter, so are we parents. But what exactly are colds and the flu? Did you know that they share some of the same symptoms? How do you tell them apart? What’s the difference between the flu and a 24 hour stomach bug? How do you treat these illnesses and what can you do if you have a special needs child that has sensitivities to medicines or has challenges with standard treatments?

Why Do Colds And The Flu Affect Kids Differently Than Adults?

In this episode of Special Parents Confidential, Dr. Patricia Schultz provides some answers. Including ways that you can help treat kids who have aversions to medicines. She also talks about the warning signs for when your child might have something else going on instead of the cold or the flu, why dehydration is a huge concern for sick kids, and – most importantly – when it’s time to take your child to the hospital.

Special Parents Confidential Episode 40 Child Medication Errors. 

Have you ever checked your child’s medications to see if you’re giving them the right medicine? Of course you have. Have you ever checked your own ability to measure out the correct dose of medicine? Are you certain your measuring ability and the tools you’re using to measure the medications are accurate? Child Medication Errors are much more common than you think.

This is a concern that’s not just for parents of special needs kids, but for all parents. The simple fact of the matter is if you are the parent of a child who has ever been prescribed a medication or has taken over the counter medications for any reason, and if you have used any kind of liquid medication, you have probably made some dosing errors whether you realize it or not.

Liquid Medication Errors and Dosing Tools, a Randomized Controlled Experiment.

In October of 2016 a study was published by the American Academy of Pediatrics that showed that greater than 84 percent of parents who participated in the study made some kind of error when measuring a liquid dose of medicine, with 68 percent of those errors being an overdose, and twenty percent of the errors being double the amount of medication that was prescribed. 

Preventing Child Medication Errors: How Accurate Are Your Measuring Tools?

The study looked at several medicine measuring tools including the small plastic measuring cups that are commonly included with over-the-counter medications, liquid measuring syringes (not the kind used in vaccinations), kitchen measuring spoons, and tableware. The degree in variations of accuracy between all these measuring tools was astonishing and alarming.

In this episode, Dr Schultz talks about the results of the study, some of the most common mistakes parents make when using measuring tools, and the dangers of incorrect dosages of medications for kids. She discusses which of the measuring tools tested was the most accurate, how to check with your doctor and your pharmacist to make sure you’re measuring accurately, and whether or not homeopathic medicines are really safer than pharmaceutical medications.

Special Parents Confidential Episode 38 All About ER  

Finally, we have this episode where we discuss trips to the ER, which can happen often, if you’re a parent of a special needs child. Dr. Schultz talks about how parents can lessen children’s fears of the ER and the doctor’s office in general. What parents can do to help doctors and staff members understand the unique challenges our kids face. How parents can best advocate for their kids. How to make sure that in an over-worked environment like a busy ER, that the staff is really focusing on our children.

Dr. Schultz also discusses what parents should do when conflicts arise with the medical staff, which unfortunately can happen. The dangers of trying to diagnose our kid’s medical problems through internet searches. Finally, why it’s important to follow up an ER visit with an appointment to your family doctor or pediatrician.

Disclaimer:  

Dr. Schultz’ contributions in all of these episodes are for informational purposes only. Always talk your family physician or pediatrician before considering any kind of medical treatment, therapy, or medication.

be nice campaign – Revisiting Special Parents Confidential 53

Bullying and social problems in school are a continuing problem. While improvements have been made in how some school districts handle these issues, the problem is still unaddressed in many cities, towns, and states. So we’re reposting SPC Episode 53, in which we learned about the ‘be nice’ campaign.

be nice. 

A new program called the ‘be nice’ campaign has been started in West Michigan to help end bullying. One of the hardest issues to deal with for parents of special needs kids – as well as parents of any child – is bullying in schools and online. What do you do if your child is the victim of bullying? For that matter, what do you do if you discover your child is bullying other children?How far does bullying affect a child? What kinds of impact does this have on a child’s mental health? 

Learn About Mental Health.

Did you know that problems with bullying are the leading cause of suicide in children and teenagers? Bullying can also cause issues of depression, drug abuse, and other mental health problems that can affect people for their entire lives.

In this episode we’re going to talk to an expert in the subject of bullying. Christy Buck is the executive director of the Mental Health Foundation of West Michigan, and they have a new program that offers a solution. It’s called the ‘be nice’ campaign and it’s designed to to help kids, families, schools, and communities work to understand and end bullying. We’ll also learn about mental illnesses, how to recognize when problems escalate to thoughts of suicide and what to do in these situations.

We also talk about the common myths and stigmas associated with bullying, depression, and mental health issues that can cause problems for kids as well as adults. For example, a person doesn’t need to ‘bottom out’ before they should get help. We discuss ways to overcome these myths and stigmas.  You’ll also learn how the ‘be nice’ campaign can be used by your school or other organizations.

Links Mentioned in the Podcast.

be nice. campaign official website

The Mental Health Foundation of West Michigan 

National Suicide Prevention Lifeline (website)

National Suicide Prevention Hotline: 1-800-273-8255.

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Access Now – Worldwide Accessibility Map

Access Now – Worldwide Accessibility Map.

Some times you come across an idea that’s so clever, you wonder why no one thought of it before. Access Now is just such an idea. Maayan Ziv, a young woman who has Muscular Dystrophy, created this app to help people with disabilities pin-point accessibility in public buildings around the world. Such a simple idea that can help a lot of people.

Crowdsourcing Accessibility Information.

Anyone can download Access Now for free and help contribute to the map. Using MapMe technology, you can pin any location around the world as either accessible, partially accessible, patio access only, or not accessible. Also, if a building is not accessible, the App helps you tweet this information to start the process to make a change to the accessibility of that location. Check out the currently pinned locations on the Access Now Map.

If You Can’t Enter…

People sometimes forget that getting into a building or business or even a home can be a real challenge for a person with a disability.  Wheelchairs, crutches, walkers, even people who use canes can have difficulties with accessibility, and sometimes building management or owners, are completely oblivious to the issues. This new App allows anyone a chance to do something about the issue, for free.

34 Countries And Growing

As of this posting, Access Now has pin-pointed over 22,000 locations in 34 Countries – and they’re just getting started. Being able to know ahead of time how easy or hard it will be for someone to gain access to a public building is extremely important. Access Now is the app that can help make the kind of change in accessibility that’s been needed for a long time. If you or someone you know needs this information, we encourage you to check it out and share it with everyone you know on social media.

Access Now Link 

Michigan Supreme Court Justice Richard Bernstein – SPC Episode 30

Michigan Supreme Court Justice Richard Bernstein

We’ve decided to start off the new year by reposting what I think is one of the most inspiring interviews I’ve done. Michigan Supreme Court Justice Richard Bernstein.

Blind Justice

In November of 2014 Richard Bernstein became the first blind attorney to be elected as a Justice to the Michigan Supreme Court. Or as he likes to say, “Blind Justice is now on the Michigan Supreme Court”.

Justice Bernstein was born blind and has risen far beyond whatever boundaries or limitations anyone could have imagined. He successfully sued against the Law School Admissions Council for the right to be admitted to law school, arguing that the LSAC test was visually biased due to their use of charts and graphs in the test. As a practicing attorney, he was a strong advocate for the rights of disabled people and special education. He’s also a marathon runner and has completed an Ironman Triathlon.

Special Education Advocate

However, he holds no illusions over how he was able to achieve so much. In his own words: “85% of the blind community is unemployed… If I hadn’t been born into the family I was born to, where I was so blessed to have the resources and opportunities and I was given the absolute best of everything, If I hadn’t been born into an affluent family, what I would honestly tell you is, that there’s no question that I would be part of that eighty-five percent of the unemployment rate. Because there’s really no difference between myself, and any other person with a disability… So I think that when you ask the question, ‘what are the biggest challenges that are currently impacting people with disabilities’, I would really venture to say that it’s primarily socio-economic.”

Improving, Not Cutting, Special Education Support.

In this episode he shares his thoughts on special education, disability laws and rights, and his ideas on the progress we’ve made as a society in dealing with individuals with disabilities. Take a listen to more of the thinking of one of the most amazing and inspiring people we’ve ever had the honor to interview. Michigan Supreme Court Justice Richard Bernstein.

As always a reminder that if you like this episode of Special Parents Confidential or any episode we’ve done, please share our site with your friends, family, and all your connections on social media. You can do this easily with the social media buttons located right below this paragraph. Like us on Facebook, follow us on Twitter, add us on Google Plus, Tumbler, Linked In, Pintrest, Stumble Upon, Reddit, or other social media sites that you use. You can also sign up for our email service and have new posts and podcast episodes delivered right to your inbox the moment they’re available online. That form is located to the right of this text. We’re also on iTunes, Stitcher, and Poddirectory as a free subscription and if you have a moment, feel free to write a review about our podcast on either of those sites. Anything you can do to help spread the word about Special Parents Confidential will help us be able to continue these podcasts.
Thanks for your support!

Links To Follow:

Richard Bernstein Profile On Michigan Courts Page

Justice Richard Bernstein Profile In Wikipedia

Justice Richard Bernstein Facebook Page

Profile Article on Justice Richard Bernstein In The Detroit News

 

Deafness and Hearing Impairment – Revisiting SPC Episode 09

Deafness and Hearing Impairment.

Deafness and Hearing Impairment are now very well understood, and once diagnosed, can be successfully managed. Everyone at some point in their lives experiences some form of hearing loss, either from their environment or due to advanced age. However many children are born every year with deafness or hearing impairment.

Technology Improvements.

Although many therapies and technologies exist to help correct deafness and hearing impairment, the same questions and issues still come up for parents of deaf and hearing impaired children as for all parents of special needs children: communication, comprehension, help in school, social acceptance, and so on. And what organizations exist that can help parents get the information that’s best suited for their children and their particular needs?

A Parent Who’s Been There.

Our guest on this episode of Special Parents Confidential, Julie Wiseman, has been through a lot of these issues. Her daughter, Kendall, was diagnosed at birth with deafness. Juli shares Kendall’s story and her own struggles with finding help, getting the right information, and many other issues that she and Kendall have faced.

Links Mentioned In This Episode: 

New – Reviews.Com: The Best Hearing Aids of 2017 – a comprehensive review of the best over-the-counter hearing aids that are available right now.

Hearing Loss Association of America  – The Nation’s Voice For People With Hearing Loss.

Listen Up – Specializing in information for the deaf and hard of hearing, and especially geared to the needs of hearing impaired children and their families. Note: this website hasn’t been updated since 2010, but still has some valuable information.

Hands & Voices – Resource website for everyone.

Guide By Your Side – This is the link to the Hands & Voices national site for finding Guide By Your Side in every state.

Gallaudet University – The premier institution of learning, teaching and research for deaf and hard-of-hearing students.

John Tracy Clinic Los Angeles – Free help for parents of deaf and hearing impaired children no matter where they live.

Alexander Graham Bell Association – Support and information for parents of children with deafness or hearing impairment.

Cochlear Implant Manufacturers (and their associations):

Advanced Bionics 

Cochlear America 

Med-El 

 

Social Issues In School – Revisiting SPC Episode 08

Social Issues In School.

When we talk about issues that can cause anxiety for parents of special needs kids,  dealing with social situations in school and elsewhere is probably right at the top of the list.  Will our children be accepted or will they be teased or shunned? Will our kids be able to handle the day to day interactions in the class room, in the cafeteria, or on the playground? What about bullying? And what are we supposed to do when our kids experience problems with these situations? Many of these social issues in school start early in pre-school and elementary school and can cause a lifetime of stress and problems for parents and children alike.

Social Workers And How They Help.

For many schools the person who can help guide our kids through their day in school is the social worker. They’re also the person who parents can talk to for help with making sure their special needs child can fit into the various social situations and can offer advice that parents can use to reinforce the school’s expectations at home. They are also often the ones who work with the parents of other students to facilitate better communication and understanding.

Advice From A Real Elementary School Social Worker

Our guest on this episode of Special Parents Confidential is Chris Kenward, an elementary school social worker who has many years of experience dealing with both special needs students and general education students.  Many experts agree, the vast majority of social problems begin early in elementary school so the sooner a child with special needs can get help in dealing with social issues, the better their progress will be throughout their life. The information Chris shares here is vital for every parent of a special needs child, as well as for teachers, special education experts, care givers, and anyone who has a relationship with a special needs kid.

Links Mentioned In This Episode

Shut Up About Your Perfect Kid – The website by the authors of the book. Includes a page with links to where you can purchase a copy of their book.

Driven Story by Jon Singer  – The website of the Sibling Support Project, where you can see stories from the book and order a copy.

Views From Our Shoes – Sibling Support  – The website of the Sibling Support Project, where you can see stories from the book and order a copy.

A Sibling’s Perspective – Revisiting SPC Episode 31

A Sibling’s Perspective.

The Holidays always mean family visits, and with that in mind, we thought our episode on a sibling’s perspective would be a good one to repost. This episode is from October of 2015, when we interviewed Aubrey Boerma, who grew up with an older brother who has Autism.

What’s it like growing up with a special needs sibling? Do you have feelings of being ignored by your parents? Do you worry about how your special needs sibling will be treated by society or your friends in particular? Are you frustrated over how often you have to explain why your special needs sibling “acts like that”? 

As hard as it is to be a parent of a special needs child, it can also be just as hard to be a sibling of one. From having to attend numerous medical or therapy appointments, to missing out on school events or social events, many siblings feel like their lives have to take second place to the lives of the special needs child. Even into adulthood, some people carry resentments and anger over their relationships with their special needs siblings. 

There Are Answers.

In this episode of Special Parents Confidential, we talk to Aubrey Boerma, who has a brother with special needs. She also works with sibling youth support groups, helping child siblings learn to cope with their special needs brothers or sisters. Aubrey talks about how not all sibling relationships have to be difficult. For many people, having a sibling with special needs can be an incredible experience. You learn to be a much more patient and tolerant person with great empathy for all kinds of situations. Many siblings of special needs children, including Aubrey, say that their brother or sister are the best thing that happened to them. She also has suggestions for parents on how to help siblings talk about their relationships and their feelings toward their special needs brother or sister.

Links To Websites Mentioned In This Podcast:

The Sibling Support Project  Founded in 1990, the Sibling Support Project is the first national program dedicated to the life-long and ever-changing concerns of millions of brothers and sisters of people with special health, developmental, and mental health concerns. 

Sibling Leadership Network – Providing siblings of individuals with disabilities the information, support, and tools to advocate with their brothers and sisters and to promote the issues important to them and their entire families.

The Sibling Survival Guide – A “How To” guide to being an adult sibling of a special needs person. 

Growing Up With Ben – The Blog Post that Aubrey wrote about her life and relationship with her special needs brother.

Sibling Support – Revisiting SPC Episode 29

Sibling Support

The Holidays always mean family visits, and with that in mind, we thought the subject of Sibling Support would be a good one to repost. This is the first of two episodes on Sibling Support we did, back in July of 2015.

Being a parent of a special needs child requires a great deal of concentration and a lot of involvement. So much so that often if the special needs child has siblings, they can feel overlooked or forgotten. Another challenge is stress involving sadness or unanswered concerns about the special needs child, which can lead to greater problems as children grow into adulthood. 

Communication Is Key

The simple fact of the matter is, the sibling is going to have the longest relationship with a person who has special needs. Longer than the parents or any professional support person. Siblings can be the most important person a special needs child will have in his or her life. Yet for many families, parents don’t always communicate well with a sibling about the situation involving the special needs brother or sister.

How can parents prevent poor relationships with the rest of their children so that they are able to help advocate and care for their special needs sibling? One excellent way is to make sure your other children have support group help, like Sibling Support.

Groups That Can Help.

In this episode of Special Parents Confidential, John talks to Andrea Vugteveen, a Sibling Support Group facilitator with Family Tree Therapies in Grand Rapids, MI. Andrea talks about the problems that siblings often have in their relationships with their special needs brother or sister, as well as their parents. She discusses what siblings of special needs kids want, and offers advice on what parents can do to make sure the relationships are strong and healthy.

Links Mentioned In This Podcast

The Sibling Support Project

Sibs UK – Sibling support for the United Kingdom

The following PDF attachment has the above links, as well as book titles, and links to You Tube videos about Sibling Support. Download the PDF by clicking here: Sib Group Parent Resources  

The following PDF attachment is the letter for the Child Who Has A Sibling With Special Needs. Download the PDF by clicking here: Dear Child Of A Sib With Special Needs

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Applied Behavior Analysis ABA – Revisiting SPC Episode 15

Applied Behavior Analysis. ABA.

In January of 2014 we posted episode 15 of Special Parents Confidential, in which we learned about Applied Behavior Analysis ABA. Our guest was Conny Raaymakers, who is a board certified behavior analyst. Her interview has become our most downloaded and listened to episode, with nearly double the listens of any other episode we’ve done. It’s even been cited in a text book on applied behavior analysis.

What Is ABA?

Applied Behavior Analysis or ABA is a term parents of special needs children hear a lot in schools, doctors offices, therapy centers, and just about anywhere our kids interact with people. Studies have shown that ABA can be used to help children as early as 18 months learn to cope with everything from social settings to the educational environment. ABA has been proven to be successful especially for children with autism and can be used to help kids with other disabilities and disorders.

New Contact Information.

However, since that interview took place, Conny has had some changes in her career. She is now the Director of ABA services at Developmental Enhancement Behavioral Health. Conny is a Behavior Analyst and Limited Licensed Behavioral Psychologist.  She talks about the history of Behavior Modification, the decades of research that has been done to study the effectiveness of the treatments, and clears up the misconceptions people have about Applied Behavior Analysis. Conny also discusses the drawbacks and problems with using alternative or ‘fad’ treatments, how to watch out for misleading claims and how to spot phony success stories.

Updated Links & Information

Developmental Enhancement Behavioral Health

Conny Raaymakers Profile Page

Email: craaymakers@debh.org 

Association for Behavior Analysis International

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Special Parents Confidential 54 Neurocore and the Education Secretary

Neurocore and the Education Secretary

The new Eduction Secretary of the United States has caused some controversy in the past months since her appointment over her views on special education, and her financial ties to a company called Neurocore. Specifically, she seems to have no interest in special education at all. Indeed, one of the first actions that took place after her appointment was the removal of all special education information from the Department of Education website. That information has since been restored, but it is still troubling. It should also be noted that this is the first time ever that an entire section of the United States Education Department’s website was deleted and only restored after public outcry. While it was claimed that there had been a simple mistake during the transition from one administration to another, many were quick to point out that this had never happened before in the entire history of the department during either administrative transitions, or otherwise.

Education and Special Education?

Further troubling is that Betsy DeVos’ only answer to any questions about the future of education in America, including special education, is to state her belief that, “parents have the right to choose what school they want their kids to attend”, and that, “states have the right to decide what that education will be”. Seemingly, without any federal government oversight. If that is truly the case, where does that leave special education, and the oversight of IDEA – the Individuals with Disabilities Education Act, that was implemented by Congress in 1991 and has been administered by the Education Department in since then?

What Is Neurocore?

During her confirmation hearings it was revealed that Mrs. DeVos and her family are the majority owners of Neurocore – a brain training program that has been hyped as a way for people with learning challenges to succeed. (They are also majority shareholders in several for-profit Charter School corporations, which we addressed in SPC Episode 43 with Kristen Totten of the Michigan ACLU.)

Our Guest: Ulrich Boser

Back in May of this year an article appeared in the Washington Post, written by our guest for this episode, Ulrich Boser. He investigated Neurocore, went to one of the Neurocore Centers to have an exam done, and checked out their findings with medical doctors and education experts. He talks about the concerns about Neurocore’s claims of success, and the problems caused by Mrs. DeVos’ financial ties to the company.

Links Mentioned in the Podcast:

Ulrich Boser’s Website and Blog

Ulrich Boser’s profile at the Center for American Progress

The article about Neurocore in the Washington Post 

Learn Better – The book about how we learn, mentioned in the podcast 

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Special Parents Confidential 53 be nice campaign.

be nice. 

A new program called the ‘be nice’ campaign has been started in West Michigan to help end bullying. One of the hardest issues to deal with for parents of special needs kids – as well as parents of any child – is bullying in schools and online. What do you do if your child is the victim of bullying? For that matter, what do you do if you discover your child is bullying other children?How far does bullying affect a child? What kinds of impact does this have on a child’s mental health? 

Learn About Mental Health.

Did you know that problems with bullying are the leading cause of suicide in children and teenagers? Bullying can also cause issues of depression, drug abuse, and other mental health problems that can affect people for their entire lives.

In this episode we’re going to talk to an expert in the subject of bullying. Christy Buck is the executive director of the Mental Health Foundation of West Michigan, and they have a new program that offers a solution. It’s called the ‘be nice’ campaign and it’s designed to to help kids, families, schools, and communities work to understand and end bullying. We’ll also learn about mental illnesses, how to recognize when problems escalate to thoughts of suicide and what to do in these situations.

We also talk about the common myths and stigmas associated with bullying, depression, and mental health issues that can cause problems for kids as well as adults. For example, a person doesn’t need to ‘bottom out’ before they should get help. We discuss ways to overcome these myths and stigmas.  You’ll also learn how the ‘be nice’ campaign can be used by your school or other organizations.

Links Mentioned in the Podcast.

be nice. campaign official website

The Mental Health Foundation of West Michigan 

National Suicide Prevention Lifeline (website)

National Suicide Prevention Hotline: 1-800-273-8255.

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Special Parents Confidential 52 Ponseti Method of Clubfoot Treatment

Ponseti Method of Clubfoot Treatment

Clubfoot, or talipes equinovarus, is a treatable birth defect that affects approximately 150,000-200,000 children each year. When clubfoot occurs the foot is twisted inward and down. For decades the standard treatment for clubfoot consisted of performing radical surgery on the tendons and bones of an infant’s feet.

In the mid 1940s, Dr. Ignacio Ponseti, an orthopedic surgeon at the University of Iowa, began reviewing the results of the surgical treatments of clubfoot that were commonly used at the time. His findings were not encouraging. He discovered that, in adulthood, former surgical patients often experienced foot stiffness, pain, arthritis, and limited mobility, and in many cases required additional surgery.

The Ponseti Method.

By studying the anatomy and functions of a baby’s foot, Dr. Ponseti developed a non-surgical method to correct clubfoot in infants through gentle manipulation of the feet followed by the application of plaster casts. In 1948, Dr. Ponseti began using what has now become known as the Ponseti Method of clubfoot treatment. 

Our guest for this episode has a great deal of experience with the Ponseti Method of clubfoot treatment. Dr. Jose Morcuende is a professor of orthopedic surgeries at the Ponseti Clubfoot Clinic at the University of Iowa Children’s Hospitals. 

Dr. Morcuende trained directly with Dr. Ponseti and has helped to promote the Ponseti Method around the world through the Ponseti International Association, of which he is the President at CEO. He talks about working with Dr. Ponseti, how clubfoot affects children born with it, and the success rate of the Ponseti Method. Dr. Morcuende also talks about the mission of the Ponseti International Association, and the importance of finding a doctor who has been fully trained in the Ponseti Method.

Links Mentioned In This Podcast.

Clubfoot – University of Iowa Stead Family Children’s Hospital 

Ponseti International Association 

To Parents of Children Born With Clubfeet – Article written for parents by the late Dr. Ponseti explaining his method of treatment.

Glossary of Terms From Ponseti International Association – Glossary of some of the common medical terms used by doctors when treating clubfoot.

Special Parents Confidential 51 Michigan Alliance For Families

Michigan Alliance For Families.

Find out how the Michigan Alliance For Families, and other similar organizations around the United States can help you negotiate special education services for free.

What Is The Michigan Alliance For Families?

Trying to get help with the special education process can be very difficult, and potentially expensive. There are dozens of advocacy service businesses and legal firms that specialize in handling IEPS for families. There are hundreds of books you can buy. Seminars you can attend. Personal counseling services. The list goes on.

But did you know that some of the best help for negotiating special education services is available for free from your own State government? Every State in America has what’s known as Parent Information and Training Centers that offer help in everything from early intervention, to writing an IEP, to legal support, transitioning issues, and beyond.

Free Is A Nice Price.

Here in Michigan, the Parent Center is called the Michigan Alliance For Families. They offer parent-mentors… these are parents of special needs children… who have been trained to coach other parents to work with schools and get the help that their children need.

Our guest for this episode is Kelly Orginski, who is the executive director of the Michigan Alliance For Families. She explains how the Michigan Alliance came together, how the parent-mentors are trained and work with families, and how they can help. She also talks about what parents can do to help themselves with the negotiations, and where to find help from similar organizations in other States.

Links Mentioned In This Podcast

Michigan Alliance For Families 

Center For Parent Information and Resources – National parent information center site.

Find Your Parent Center – Directory from the Parent Information and Resources website that links to all State Parent Information Centers.

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Early Intervention – Revisiting Special Parents Confidential Episode 25

Early Intervention – Revisiting Special Parents Confidential Episode 25.

It’s IEP Season and we’re looking back on older episodes that deal with Individualized Education Plans. Early Intervention is one of the first terms that parents hear when they are trying to find help for their children. We talk to an early intervention coordinator to learn about the process.

Early Intervention.

There’s probably nothing more nerve-wracking and stressful for any parent than the realization that your new baby, your toddler, your child might have some problems. Whether it’s not speaking, not walking, or not engaging socially like other kids, the hardest question many parents face is, what do I do about this?

Of course friends and relatives will tell you, oh it’s alright, that’s just how some boys or some girls are… and they’ll grow out of it. But that’s not always the best advice, and if  your child does have a developmental delay or a learning disorder, they are simply not going to grow out of it. They need help. And then the question becomes, where do I get that help?

Our guest on this episode of Special Parents Confidential can answer a lot of those questions. Barbara Corbin is the Early On Coordinator with the Kent Intermediate School District in Kent County, Michigan.  She handles Early Intervention, and Early Childhood Special Education with school districts. She helps parents get their first diagnosis and coordinates getting help for children right at the very beginning. Thanks to advances in medical research and therapies, children can be diagnosed very early, and Early On programs can start at age two.

Links to websites mentioned in the podcast:

1800EarlyOn Early Intervention information for Michigan, with links to other States. The website name is also their toll free phone number: 1 800 Early On.

The Arc of Kent County Information resource for people with intellectual and developmental delays.

Center For Disease Control (CDC) Page for Parents and Infants This page has the Milestones and Schedules information to track expected progress for infants and toddlers.

Great Starts Collaborative Early Intervention Page Success Starts Early’s webpage on Early Interventions. The entire site is full of helpful information for all parents.

Pathways.org  Free online resource and tools for parents.

The Early Childhood Technical Assistance Center Online resource tools for families of children with special needs.

Michigan Alliance for Families.  Provides information, support, and education for families who have children (birth through 26 years of age) who receive (or may be eligible to receive) special education services.

Revisiting Special Parents Confidential Episode 06 Special Education Advocacy

Revisiting Special Parents Confidential Episode 06 Special Education Advocacy.

It’s IEP Season and we’re revisiting older episodes that offered information to help with the IEP process. Today we’re Revisiting Special Parents Confidential 06 Special Education Advocacy. Learn about the role of the Special Education Advocate and how they help parents negotiate the Individualized Education Plan, as well as the 504 Special Education Plan, and what the difference is between these two options.

Special Education Advocacy.

As parents of special needs children we hope that our kids will have every opportunity to get a good education, and get assistance when they need it in school. Special Education has changed over the past couple of decades. Special needs children are spending more time in mainstream classrooms and spending only limited time out of the class with their special education teachers for whatever assistance they need.

But what exactly is Special Education? We know that our kids are supposed to get help. Where can we get good advice or assistance when facing the task of getting the educational help for our special needs children? Do we have to see a lawyer? Can we just expect the school to handle it properly? What are the standards? What’s an “IEP” (Individual Education Program), what’s a “504”, and what kind of educational help can we even reasonably expect our children to have in the first place?

Our guest on this episode of Special Parents Confidential can answer a lot of those questions. Kathy Holkeboer is a Special Education Advocate in West Michigan. Advocates for Special Education work with families on understanding what kinds of educational assistance their special needs children are entitled to have, based on need.  They can even go with the parents to meet with school officials to put the special education plan in place for each school year.

Links To Websites Mentioned In This Podcast

Pacer Center The National Parent Training and Information Center for children with disabilities. They offer publications, workshops, and other resources to help parents make decisions about education, vocational training, employment, and other services for children with special needs.

Parent Technical Assistance Center Network Directory of regional (State by State) special education advocacy centers for parents of special needs children.

Michigan Alliance for Families Special Education Advocacy for families in Michigan. Note: for non- Michigan residents, you can search similar websites for your state in the PTAC directory.

Wright’s Law Special Education Law and Advocacy, created by two lawyers, Peter and Pam Wright (husband and wife), providing legal assistance and information for parents of special needs children.

Contact Information for Kathy Holkeboer – (note: Kathy is a special education advocate in the State of Michigan, and works primarily in the West Michigan region. Residents of other States or regions in Michigan should consult the PTAC directory for Special Ed Advocates in their area). Holkeboer Advocacy -Facebook page.

Revisiting Special Parents Confidential Episode 10 Special Education

Revisiting Special Parents Confidential Episode 10 Special Education.

It’s IEP Season, and we’re revisiting some of our older episodes that have information that will help you with the process. In this episode, we find out what Special Education is all about.

Special Education.

In this episode we take a look at the world of Special Education. What exactly is Special Education? How do teachers become Special Education teachers? How and why has the concept of Special Education changed over the years from isolation and institutionalization to mainstreaming and inclusion, and has it worked? How do researchers determine what works and what doesn’t work? And are the current budget problems that so many state governments face affecting Special Education in our schools?

Our guest for this episode has answers to all of those questions and many other questions. Paula Lancaster is a Professor of Special Education and the Chair of the Special Education, Foundations, and Technology Department at Grand Valley State University in West Michigan. We talked about a wide range of issues including the questions above, as well as discussing some of the major misconceptions about Special Education; the differences in how Special Education is handled by public schools, charter schools, and private schools; how Special Education changes from elementary school to middle school, to high school, and college; to the importance of special needs children learning to advocate for themselves; how to make sure that the information you’re finding is proven to work versus a marketing scam; and a lot more. This is one of the longest episodes of Special Parents Confidential that we’ve recorded, but Paula shares some very important information that you and everyone who is interested in Special Education need to know.

Links Mentioned In The Podcast: 

What Works Clearinghouse The Institute of Education Sciences. Providing educators (parents can use it too) with the information they need to make evidence based decisions.

LD Online  Learning Disabilities Online. The world’s leading website on learning disabilities and ADHD.

Council For Exceptional Children The Voice and Vision of Special Education. Excellent resource site.

National Dissemination Center For Children With Disabilities Another excellent resource website. Provides easy-to-read information on children with disabilities from infants to early 20s.

Note:  Paula’s advice on researching information: Whenever you encounter a site that you’re not certain whether the info is credible, scroll down to the bottom (or check ‘about us’ info), and find out who is responsible for the website content.

The Self-Advocacy Strategy Paula and Sean Lancaster’s software package that teaches children the strategies of negotiation and self-advocacy. Great for all kids, not just special needs children.

Special Parents Confidential 46 Sensory Processing Disorder

Sensory Processing Disorder.

Virtually everyone has heard of sensory overload, and sensory issues. People who have problems with loud noises, large crowded areas, tastes, textures, strong smells, bright lights, the list goes on.

Not A Symptom of Something Else.

For decades sensory issues were simply considered a side-effect of whatever the more prevalent disorder was inhibiting the child, whether Autism Spectrum Disorder, ADHD, Dyslexia, Multiple Sclerosis, and other disorders. However medical research has proven that this is a separate disorder, called Sensory Processing Disorder.  And there is now a push to have it recognized by the Diagnostic and Statistical Manual of Mental Disorders – known as DSM – which is the official medical reference for physicians.

SPD Parent Zone.

My guest for this episode has first hand knowledge of Sensory Processing Disorder. Kelly Jurecko is the President and Co-Founder of SPD Parent Zone, a non-profit organization that offers a website that is full of reliable and credible information on Sensory Processing Disorder. She also hosts a blog and a podcast on the site where she posts articles and interviews experts on SPD and keeps people updated on the latest information.

If your child is having any kind of sensory issues, SPD Parent Zone is a website you need to bookmark and search.

Links Mentioned In The Episode.

SPD Parent Zone

SPD Parent Zone Podcast on iTunes

SPD Foundation – The Star Institute For Sensory Processing Disorder

The Sensory Processing Disorder Resource Center

Support Special Parents Confidential.

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Thanks for listening.

Special Parents Confidential 45 Soledad O’Brien

Soledad O’Brien Interview.

A few months ago, while in a doctor’s office for a checkup, reading the usual magazines, my wife happened to see an article about Soledad O’Brien. She talked about her son Jackson, who was having issues in school with behavior and not understanding instructions from the teacher. Finally, Jackson was diagnosed with 80% hearing loss and is now receiving special support help in school. The interview detailed much of the work that Soledad does, not only for her own children’s education, but also her charity, The Starfish Foundation, which helps support education for middle to low income girls in school.

The article inspired us to get in contact with Soledad’s production company to ask if she would be willing to talk about some of the work she does and the issues that matter to her most about education and special education in America, and around the world. We’re pleased to say that she graciously agreed and this is episode is the resulting interview.

A Great Advocate For Education

As you listen to hear speak, it’s clear that Soledad O’Brien is not only a great advocate for education, but she stresses the importance of all parents being involved in their children’s education, whether the child is in special education or general ed. She is also passionate about the need for proper funding for public education and special education. As she says in the interview, “…the amount of money that it takes to keep people in prison could pay for them to go to Harvard.”

Links Mentioned In The Podcast

The Interview With Soledad O’Brien In Health Magazine (online at WebMD).

Starfish Media Group – Soledad O’Brien’s Production Company

The Starfish Foundation – The education charity founded by Soledad O’Brien and her husband, Brad Raymond.

Matter of FactNew in-depth interview program produced and hosted by Soledad O’Brien.

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Special Parents Confidential Episode 39 All About Clubfoot

All About Clubfoot.

Clubfoot is one of the most common birth defects and can cause serious disabilities for those born with it. The foot can be turned severely inward so that, if untreated, a child will start to walk on their ankles, or in some cases, on the tops of their feet.

For over a century or more treatments for clubfoot consisted of small casts or EFO boots and radical surgery to the bones and tendons of the foot. This treatment was done without fully understanding how the bones, tendons, and muscles of the foot grow and develop over the years. People who are given this type of treatment are left with feet that appear straight, but typically develop arthritis and have difficulties in walking as early as age 20.

However, in the past fifty years a new treatment has emerged for Clubfoot that typically avoids any surgery and instead corrects the foot with manipulation, casts, and a brace bar. It’s known as the Ponseti Method of treating clubfoot, and it’s proven to be highly effective with an over 85 percent success rate.

Our guest for this episode is Dr. Michael David, who is a podiatrist at Foot and Ankle Specialists of West Michigan. Dr. David is certified in the Ponseti Method of clubfoot treatment. He talks about how Dr. Ignacio Ponseti developed his non-surgical treatment for clubfoot and how the treatment works. He also talks about the training a physician goes through to become certified in the Ponseti Method of Clubfoot treatment, and what parents should know when looking for a physician who is certified in the Ponseti Method.

Links mentioned in this episode:

Foot and Ankle Specialists of West Michigan 

Dr. David’s Profile on the FASWM Website 

To The Parents of a Child Born With Clubfoot – Article from the University of Iowa Children’s Hospital written by Dr. Ponseti explaining his treatment methods.

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Special Parents Confidential Episode 38 All About ER

All About ER.

For some parents of Special Needs Children, trips to the ER – Emergency Room – can become as frequent as going on family outings. Those trips can be frightening for both the parents, the special needs child, and the siblings. What can parents do to minimize trips to the ER? When is a trip to the ER necessary?  What can parents do to minimize their children’s fears when going to the emergency room? Additionally, what should parents do to make sure their concerns are being met? 

For this episode, we are fortunate to have as a guest, Doctor Patricia Schultz an emergency medicine trained physician.  After finishing residency and practicing in the ER for a few years, she found her real passion was utilizing her medical training to help patients and families get the best medical care possible. She also taught medical students how to perform to the best of their abilities while having the utmost empathy, respect and compassion for their patients.  Dr. Schultz is currently a healthcare consultant in the private sector, and is working on writing her second book. 

She talks about how parents can lessen children’s fears of the ER and the doctor’s office in general. What parents can do to help doctors and staff members understand the unique challenges our kids face. How parents can best advocate for their kids. How to make sure that in an over-worked environment like a busy ER, that the staff is really focusing on our children.

Dr. Schultz also discusses what parents should do when conflicts arise with the medical staff, which unfortunately can happen. The dangers of trying to diagnose our kid’s medical problems through internet searches. Finally, why it’s important to follow up an ER visit with an appointment to your family doctor or pediatrician.

Disclaimer:  Dr. Schultz’ contributions in this episode are for informational purposes only. Always talk your family physician or pediatrician before trying any kind of medical treatment, therapy, or medication.

Links Mentioned In This Podcast

American Academy of Pediatrics – Their main website page.

Healthy Children From The AAP – Website from the American Academy of Pediatrics that allows for customizing your family health information.

The Mayo Clinic Symptoms Page – Database of illnesses, symptoms, and first aid treatments.

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Special Parents Confidential Episode 36 Mentoring Programs

Mentoring Programs

Mentoring programs for children are some of the most successful social and educational support systems available. 

Many experts on child education will tell you that having someone who can mentor, coach, or demonstrate to kids how to do things outside of school and family is vital. Being able to talk to an adult mentor who can help a child with school goals and career choices can make a huge difference for a child’s confidence and outlook. Significant studies over the years have shown that kids who have been helped through mentoring programs are less likely to get into trouble in school, become more confident about their school performance, and get along better with their friends and families.

Now there’s a mentoring organization just for kids with special needs. Project Ready Set Goal , based in Grand Rapids, Michigan, offers mentoring for children with learning disabilities and physical disabilities. They help kids with academic and career guidance, building leadership skills, and help with social issue strategies and learning how to advocate for themselves. And it’s all done for free.

In this episode we talk with Janine Thomas, executive director of Project Ready Set Goal to find out more about the services and help they provide. She talks about their screening process for mentors, gives examples of how mentoring programs can help kids with school, as well as their future life choices.  Janine also talks about why she wanted to focus on mentoring for special needs children, and how she hopes that her idea will grow across the country.

As always a reminder that if you like this episode of Special Parents Confidential or any episode we’ve done, please share our site with your friends, family, and all your connections on social media. You can do this easily with the social media buttons located right below this paragraph. Like us on Facebook, follow us on Twitter, add us on Google Plus, Tumbler, Linked In, Pintrest, Stumble Upon, Reddit, or other social media sites that you prefer. You can also sign up for our email service and have new posts and podcast episodes delivered right to your inbox the moment they’re available online. That form is located to the right of this text. We’re also on iTunes, Stitcher, TuneIN, and Poddirectory as a free subscription and if you have a moment, feel free to write a review about our podcast on either of those sites. Anything you can do to help spread the word about Special Parents Confidential will help us be able to continue these podcasts.
Thanks for your support!

Special Parents Confidential Episode 35 Medical Advocacy

Medical Advocacy.

One of the continuous aspects of having a child with special needs is medical care and medical issues. Parents of special needs children often find themselves visiting medical facilities as often as they visit family or friends. Sometimes more often.

Understanding the medical issues our children have, however, isn’t easy. Too often the medical experts we see are not always able to give us the answers we need when we need them. Or in some cases the answers we get create even more questions. Sometimes parents turn to the internet to understand more about the issues and challenges our kids face. But the internet is not always a reliable source of information, and that can lead to poor choices, and bad outcomes that could have been prevented if the parents had access to the right help when they needed it.

With the increasing ‘corporatizing’ of the American medical industry, and insurance companies regulating how medical care can be done, with the emphasis being placed on cost-efficiency, parents can be left confused and uncertain about the care their children are being given. Medical groups and insurance companies are trying to address this situation by offering in-house medical advocacy services, but there are doubts as to whether those services are being made for the good of the patient or the good of the industry.

In the past few years a new kind of service business has taken root: private professional medical advocacy. These companies are usually medical professionals, such as Registered Nurses, who work exclusively for the patients or their caregivers and guardians. Their role is to advocate for the families to make sure that the medical companies and the insurance companies are offering the care and services that the patient really needs.

One such business is North Shore Patient Advocates, based in Chicago. John recently spoke to their President and Chief Advocate, Teri Dreher, RN, to find out about some of the problems that families can encounter when dealing with medical groups and the health insurance industry, and how private medical advocates can help families.

Links Mentioned In this Podcast

North Shore Patient Advocates – Family medical advocacy services based in Chicago, IL.

Alliance of Professional Health Advocates – International database of health care advocates for the United States, Canada, and Worldwide.

National Association of Healthcare Advocacy Consultants – National database of health care advocates.

Or, google search Private Professional Healthcare Advocates for your area.

 

 

Special Parents Confidential Episode 34 Down Syndrome

Down Syndrome. Myths and Facts.

Down Syndrome is one of the most well known of all disorders and disabilities. The common facial characteristics of Down Syndrome, along with certain physical challenges make the disorder easy to recognize. Yet, for all the familiarity, most people know very little about Down Syndrome and how it affects those who have the disorder.

Despite many years of progress and improvements in medical research of it’s causes, most of “what we know” about Down Syndrome is rooted in beliefs that are out of date by many decades. Often, parents who’s child has been given a diagnosis are told to expect a very bleak future, with many medical challenges, along with physical and cognitive difficulties for their child. While that can be true to a certain extent, in most cases the future for someone with Down Syndrome is nowhere near as bad as some people believe.

Fortunately many organizations across the United States, and around the world, have come out to help parents, families, educators, and even the medical community gain a better understanding of Down Syndrome and how it affects those who have it. One such organization is the Down Syndrome Association of West Michigan. They offer a variety of programs and services to help and inform everyone who has interest in Down Syndrome. 

We’re pleased to interview Meredith Lange, Community Relations Specialist of DSAWM, who talks about the common misconceptions about Down Syndrome and provides the facts. She also talks about what life is like for children and adults with Down Syndrome and how most of the misunderstandings cause more harm than good. People with Down Syndrome can do well in school, can have successful careers, even becoming business owners and executives.

Links to Websites mentioned in the podcast:

National Down Syndrome Society 

National Down Syndrome Congress 

Down Syndrome Affiliates in Action 

Global Down Syndrome Foundation 

As always a reminder that if you like this episode of Special Parents Confidential or any episode we’ve done, please share our site with your friends, family, and all your connections on social media. You can do this easily with the social media buttons located right below this paragraph. Like us on Facebook, follow us on Twitter, add us on Google Plus, Tumbler, Linked In, Pintrest, Stumble Upon, Reddit, or other social media sites that you prefer. You can also sign up for our email service and have new posts and podcast episodes delivered right to your inbox the moment they’re available online. That form is located to the right of this text. We’re also on iTunes, Stitcher, TuneIN, and Poddirectory as a free subscription and if you have a moment, feel free to write a review about our podcast on either of those sites. Anything you can do to help spread the word about Special Parents Confidential will help us be able to continue these podcasts.
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Special Parents Confidential Episode 33 Lt. Governor Brian Calley Returns

Lt. Governor Brian Calley Returns.

What a difference a year can make. In December of 2014, the Michigan Joint Committee on Administrative Rules was going to approve some changes to the Michigan Administrative Rules for Special Education (MARSE) that would have severely impacted parent participation in their children’s education. However, during the only Public Comment time the committee allowed, Michigan’s Lieutenant. Governor, Brian Calley asked the committee to suspend the meeting and take no further action, because he felt that there had not been an adequate amount of time to allow parents to have input into the rules changes.

What followed next, in 2015, was an unprecedented listening tour undertaken by the Lieutenant Governor. He traveled around the State, holding public meetings where he listened to parents of special needs children talk about their concerns. These meetings were up to two hours in length, during which the Lt. Governor said very little and allowed every parent who attended to speak.

I was privileged to attend the meeting the Lieutenant Governor held in Grand Rapids, and had a chance to ask him if he would be a guest on Special Parents Confidential to talk about his efforts. That interview took place in June and you can listen to it here – Special Parents Confidential Episode 24.

In November of 2015, Lt. Governor Calley completed his listening tour and compiled a report summarizing the key points from parents for Michigan Governor Rick Snyder, who then appointed Lt. Governor Calley to head a Special Education Reform Task Force, which would take the Lt. Governor’s report and make a recommendations strategy for the State Board of Education. That report was presented to the Board of Education in January of 2016.

We are very pleased that Lt. Governor Brian Calley has taken time from his schedule to talk to us on Special Parents Confidential about the Special Education Reforms that the Task Force has recommended, and what Michigan families can do to help. Lt. Governor Calley also talks about a new project that he and Michigan Supreme Court Justice Richard Bernstein (who I interviewed in August of 2015 – Special Parents Confidential Episode 30) are working on together, called the Hidden Talent Tour.

As always a reminder that if you like this episode of Special Parents Confidential or any episode we’ve done, please share our site with your friends, family, and all your connections on social media. You can do this easily with the social media buttons located right below this paragraph. Like us on Facebook, follow us on Twitter, add us on Google Plus, Tumbler, Linked In, Pintrest, Stumble Upon, Reddit, or other social media sites that you use. You can also sign up for our email service and have new posts and podcast episodes delivered right to your inbox the moment they’re available online. That form is located to the right of this text. We’re also on iTunes, Stitcher, and Poddirectory as a free subscription and if you have a moment, feel free to write a review about our podcast on either of those sites. Anything you can do to help spread the word about Special Parents Confidential will help us be able to continue these podcasts.
Thanks for your support!

Links mentioned in the podcast:

Michigan Lieutenant Governor Brian Calley’s Website

Summary of the Special Education Reform Task Force Recommendations

Full Report of the Special Education Task Force (.pdf form)

Information on the members of the Special Education Task Force

Information on the Michigan Hidden Talent Tour 

Michigan Senate Website – including the Find Your Senator link

Michigan House Website – including the Find Your Representative link

 

John Pellegrini Will Speak At The 2016 Kent ISD LEAP Conference

John Pellegrini Will Speak At The 2016 Kent ISD LEAP Conference.

I am very excited to announce that I’ve been invited to give the keynote speech at this year’s Kent Intermediate School District LEAP Conference.

LEAP, which stands for Lead Empower Assist Parents is a day-long six hour conference, scheduled for Saturday, March 12th, 2016, for parents of Special Needs Children in Kent County, Michigan. The workshop is designed for parents and providers of children with special needs to meet with area experts, educators, therapists, and other organizations who work to help children with special needs. Exhibitors, vendors and service providers will be on hand throughout the day to share resources and answer questions.

Many presenters at this year’s LEAP Conference have been guests on Special Parents Confidential and they will be talking in greater depth about their services. For my own Keynote Presentation, I’m going to talk about Special Parents Confidential, why I decided to create the podcast, and what I’ve learned in the three years that I’ve been doing these episodes. You’ll also have a chance to ask questions and I’m interested in hearing your ideas for future episodes.

Some of the breakout sessions during the day include legal planning for a child with disabilities, challenging behaviors: when typical parenting strategies aren’t working, caring for the caregiver, building communications skills through play, aided communication for early childhood, and much more. You’ll also be able to meet the presenters in the vending area. Free childcare will be provided throughout the day by the David D. Hunting YMCA.

There’s still time to register to attend the LEAP Conference. You can find out more information on the Kent ISD LEAP Conference Page, and you can register to attend the conference (cost is $15.00 per person) by Clicking on the LEAP Registration Page. If you live in the West Michigan area, I highly recommend you attend the Kent ISD LEAP Conference. Looking forward to seeing you there!

Kent ISD Leap Conference Page

LEAP Registration Page

LEAP Breakout Session Schedule.

Special Parents Confidential Episode 31 A Sibling’s Perspective

A Sibling’s Perspective.

What’s it like growing up with a special needs sibling? Do you have feelings of being ignored by your parents? Do you worry about how your special needs sibling will be treated by society or your friends in particular? Are you frustrated over how often you have to explain why your special needs sibling “acts like that”?

As hard as it is to be a parent of a special needs child, it can also be just as hard to be a sibling of one. From having to attend numerous medical or therapy appointments, to missing out on school events or social events, many siblings feel like their lives have to take second place to the lives of the special needs child. Even into adulthood, some people carry resentments and anger over their relationships with their special needs siblings. 

In this episode of Special Parents Confidential, we talk to Aubrey Boerma, who has a brother with special needs. She also works with sibling youth support groups, helping child siblings learn to cope with their special needs brothers or sisters. Aubrey talks about how not all sibling relationships have to be difficult. For many people, having a sibling with special needs can be an incredible experience. You learn to be a much more patient and tolerant person with great empathy for all kinds of situations. Many siblings of special needs children, including Aubrey, say that their brother or sister are the best thing that happened to them. She also has suggestions for parents on how to help siblings talk about their relationships and their feelings toward their special needs brother or sister.

Links To Websites Mentioned In This Podcast:

The Sibling Support Project  Founded in 1990, the Sibling Support Project is the first national program dedicated to the life-long and ever-changing concerns of millions of brothers and sisters of people with special health, developmental, and mental health concerns. 

Sibling Leadership Network – Providing siblings of individuals with disabilities the information, support, and tools to advocate with their brothers and sisters and to promote the issues important to them and their entire families.

The Sibling Survival Guide – A “How To” guide to being an adult sibling of a special needs person. 

Growing Up With Ben – The Blog Post that Aubrey wrote about her life and relationship with her special needs brother.

Traveling For Medical Or Therapy Reasons – Some Tips

Traveling For Medical Or Therapy Reasons – Some Tips.

One of the most concerning dilemmas faced by parents of special needs children is the search for medical specialists. Whether it’s for physical disabilities, developmental disabilities, or learning disabilities, our kids have challenges that sometimes cannot be treated by standard family medical practices.

To complicate matters further, depending on where you live there may not be any specialists who are qualified in your child’s particular need. Furthermore, in some cases, complex issues arise that require a higher degree of specialty in your child’s issue.

The unfortunate fact is for many parents of special needs children, getting the right kind of medical or therapeutic services may require traveling long distances across a state or even several states in order to get the help needed.

We faced this situation a few years back, and after doing a lot of research, we were able to find services that made traveling a lot easier and less stressful.

Car Rentals. 

When making repeated day trips — traveling by vehicle to and from your destination — you might want to consider renting a car instead of putting all the miles and wear on your own vehicle. Here are some tips on car rentals:

Renting a car from an agency that is not located at an airport is usually cheaper. Car rental offices located at airports or transportation hubs charge extra return and usage fees that are typically waived at off-site car rental offices. Car rental agencies usually have a greater number of small to mid-size cars for rent than large sedans, vans or SUVs, so you’ll have an easier time getting the vehicle you want if you can take a small to midsize model.

Most car rental agencies offer unlimited milage in their packages. However, almost all of them have a two to four state restriction on where you can drive the car. For example, if you rent a car in Chicago, you may be restricted to travel only in Illinois, Indiana, Michigan, and Wisconsin (or fewer states). Be certain to ask the rental agent if you need to travel further than your region. The only rental agency we found that has absolutely no restrictions on inter-state travel within the 48 contiguous states is Hertz… however be sure to ask because that may change without notice.

Travel By Air.

When traveling a greater distance than you can drive in one day, you may want to consider air travel. Two great organizations exist to help you make those flights for free.

Air Care Alliance. Air Care Alliance helps to coordinate public benefit flying groups like Angel Flight, Operation Angel Planes, Wings of Hope, and many more. They offer free travel for medical needs on private planes in the United States, as well as international public benefit flight groups. 

Because Air Care Alliance works with private plane owners with all different kinds of aircraft you might fly on anything from a corporate jet to a small four passenger plane, depending on your needs. This service can accommodate small town airports that are not often served by commercial flights. Check out Air Care Alliance’s directory of groups that they work with:          Air Care Alliance Groups Directory

Miracle Flights. Miracle Flights – How We Help Miracle Flights offers free commercial airline travel from frequent flyers who donate their milage awards. They also work with the airlines for accommodations and accessibility for specialized medical needs. Miracle Flights has free travel available on domestic U.S. flights, as well as International flights, and can even help families accommodate service dogs on flights.

Overnight Stays.

Let’s face it, hotels can be expensive and a stay in one for medical or therapy reasons is typically not covered by health insurance plans. Fortunately there are some options that are very affordable and offer great services for special needs children.

The most well known are the Ronald McDonald Houses. Most RMH locations offer accommodations for families of children up to age 18 receiving medical or therapeutic care. The facilities are equipped with all accessible rooms, elevators, indoor play areas, libraries, video game consoles, and other fun areas for kids. Some also have outdoor accessible playgrounds. Rooms vary from two beds and a bathroom, to family rooms with living rooms and dining tables, a kitchen, and one or two bedrooms. Laundry facilities are available and a group kitchen and dining room are also included for all guests. Most RMH facilities also offer transportation services to the hospitals or clinics where you need to go, as well as transportation to local airports, train stations, or bus depots.

Ronald McDonald House facilities typically offer overnight stays for a donation of up to twenty five dollars per night, depending on location and availability, but can work with families on ability to pay with free of charge options. If the RMH you are hoping to stay with does not have a room available for the night you need, they can offer vouchers for greatly reduced rates at nearby hotels of up to seventy five percent off a regular night’s stay, depending on availability. It’s best to call the local RMH near your destination for detailed information and reservations.

Other options: Check with the hospital or clinic that you are traveling to for other recommendations on overnight stays. Some offer hotel style rooms for families right within their facilities. There may also be other accommodation services for family medical stays in the nearby area that they can arrange for you.

Final Thoughts:

Traveling for medical or therapy reasons can be one of the most stressful things a family will go through. Take the time to research where you are going, how to get there, and where you will stay before you go. Ask lots of questions about accommodations, nearby facilities, even information on local grocery and retail stores. Get directions and use internet map services or GPS apps to help you figure out where you will be and how to get around. If you travel without a vehicle, find out about public transportation options and/or taxi services in the city where you are staying.

Get to know the city you’re traveling to with Wikipedia and Wikivoyage (formerly Wikitravel), especially if you’re going to have a stay of a few days or more, so that you will have options for things to do when you have some time to venture out for a break. This will happen. You’ll need a break from time to time… it won’t make you a bad parent to take a little time for yourself. You might also have time to take your child out for a little adventure between therapies or medical treatments. Knowing where to go for fun at those times will definitely help.

Planning ahead and lots of research will help you make the best of a difficult situation and make the experience better for your child.

Click on the link below for a downloadable PDF version of this article.

Traveling For Medical Or Therapy Reasons – Some Tips

Announcement From MI Lt. Governor Brian Calley

Announcement From MI Lt. Governor Brian Calley.

Back in June of 2015, we interviewed Michigan Lt. Governor Brian Calley about his concerns on special education, and his efforts to provide better inclusion for parents in the education process. You can listen to that interview by clicking Special Parents Confidential Episode 24 

Today we received the following email update from Lt. Governor Calley:

Good afternoon,

There is no doubt that educating a child with Special Education needs has its own unique challenges for parents and educators. It is important that we work to ensure Michigan’s system is the finest it can be to serve students and parents safely, openly and constructively. For months, I have traveled across Michigan to listen to parents and requested feedback via an online survey. I have made nine listening tour stops to date and heard from nearly 2,000 parents online. 

Now it is time for the next step. On Tuesday, September 8, I will be providing testimony before the state Board of Education regarding what I have heard and learned during this process and how we can all work together to make necessary improvements. The meeting will be at 11:30 a.m., at the John A. Hannah Building, Fourth Floor, 608 West Allegan Street in Lansing.
Please feel free to attend if you’re available. The Department of Education also will be livestreaming the meeting. The link will be available at www.michigan.gov/mde on Tuesday morning.

I have appreciated the input I received from many of you in person and online. Now it’s time to harness all of our efforts and work together to improve special education in Michigan for everyone. 

Sincerely,

Lt. Gov. Brian Calley

*****************

This is the final part of an extraordinary effort on the part of our Lieutenant Governor to help improve Special Education in Michigan. For the full details on why he is making this happen, take a listen to our interview in Episode 24.  

Be sure to view the live-stream coverage of the meeting on Tuesday September 8th at 11:30 am. Use this link to see it live: www.michigan.gov/mde

Special Parents Confidential Is Now On TuneIn

Special Parents Confidential Is Now On TuneIn. 

We are excited to announce that Special Parents Confidential is now available to access for free subscription on TuneIn.

TuneIn is a free media service featuring over 100,000 online radio stations and 4 million podcasts. Over  Fifty Million people have signed up to use TuneIn as their source for music streaming and online audio content. TuneIn has an app available for Android and Google Play listeners, which means you can use it to access Special Parents Confidential on all Android and Google Play devices.

Click on this text link: Special Parents Confidential on TuneIn, or use the TuneIn button located on the right of this post under “Follow Us”. You can also use the Sharing buttons below this entry.

We’re working to provide our listeners with the most accessibility to find and listen to episodes of Special Parents Confidential. Joining TuneIn is one more great avenue to find Special Parents Confidential, along with iTunes, Stitcher

Please share with your friends and family on all social media. Use the buttons below to share this post with any of the social media services listed below. And be sure to check us out on TuneIn.

Special Parents Confidential Episode 30 Blind Justice

Blind Justice.

Our guest for this episode of Special Parents Confidential is Michigan Supreme Court Justice Richard Bernstein. In November of 2014 he became the first blind attorney to be elected as a Justice to the Michigan Supreme Court. Or as he likes to say, “Blind Justice is now on the Michigan Supreme Court”.

Justice Bernstein was born blind and has risen far beyond whatever boundaries or limitations anyone could have imagined. He successfully sued against the Law School Admissions Council for the right to be admitted to law school, arguing that the LSAC test was visually biased due to their use of charts and graphs in the test. As a practicing attorney, he was a strong advocate for the rights of disabled people and special education. He’s also a marathon runner and has completed an Ironman Triathlon.

However, he holds no illusions over how he was able to achieve so much. In his own words: “85% of the blind community is unemployed… If I hadn’t been born into the family I was born to, where I was so blessed to have the resources and opportunities and I was given the absolute best of everything, If I hadn’t been born into an affluent family, what I would honestly tell you is, that there’s no question that I would be part of that eighty-five percent of the unemployment rate. Because there’s really no difference between myself, and any other person with a disability… So I think that when you ask the question, ‘what are the biggest challenges that are currently impacting people with disabilities’, I would really venture to say that it’s primarily socio-economic.”

In this episode he shares his thoughts on special education, disability laws and rights, and his ideas on the progress we’ve made as a society in dealing with individuals with disabilities. Take a listen to more of the thinking of one of the most amazing and inspiring people we’ve ever had the honor to interview. Michigan Supreme Court Justice Richard Bernstein.

As always a reminder that if you like this episode of Special Parents Confidential or any episode we’ve done, please share our site with your friends, family, and all your connections on social media. You can do this easily with the social media buttons located right below this paragraph. Like us on Facebook, follow us on Twitter, add us on Google Plus, Tumbler, Linked In, Pintrest, Stumble Upon, Reddit, or other social media sites that you use. You can also sign up for our email service and have new posts and podcast episodes delivered right to your inbox the moment they’re available online. That form is located to the right of this text. We’re also on iTunes, Stitcher, and Poddirectory as a free subscription and if you have a moment, feel free to write a review about our podcast on either of those sites. Anything you can do to help spread the word about Special Parents Confidential will help us be able to continue these podcasts.
Thanks for your support!

Special Parents Confidential Episode 29 Sibling Support

Sibling Support.

Being a parent of a special needs child requires a great deal of concentration and a lot of involvement. So much so that often if the special needs child has siblings, they can feel overlooked or forgotten. Another challenge is stress involving sadness or unanswered concerns about the special needs child, which can lead to greater problems as children grow into adulthood. 

The simple fact of the matter is, the sibling is going to have the longest relationship with a person who has special needs. Longer than the parents or any professional support person. Siblings can be the most important person a special needs child will have in his or her life. Yet for many families, parents don’t always communicate well with a sibling about the situation involving the special needs brother or sister.

How can parents prevent poor relationships with the rest of their children so that they are able to help advocate and care for their special needs sibling? One excellent way is to make sure your other children have support group help, like Sibling Support.

In this episode of Special Parents Confidential, John talks to Andrea Vugteveen, a Sibling Support Group facilitator with Family Tree Therapies in Grand Rapids, MI. Andrea talks about the problems that siblings often have in their relationships with their special needs brother or sister, as well as their parents. She discusses what siblings of special needs kids want, and offers advice on what parents can do to make sure the relationships are strong and healthy.

Links Mentioned In This Podcast

The Sibling Support Project

Sibs UK – Sibling support for the United Kingdom

The following PDF attachment has the above links, as well as book titles, and links to You Tube videos about Sibling Support. Download the PDF by clicking here: Sib Group Parent Resources  

The following PDF attachment is the letter for the Child Who Has A Sibling With Special Needs. Download the PDF by clicking here: Dear Child Of A Sib With Special Needs

As always a reminder that if you like this episode of Special Parents Confidential or any episode we’ve done, please share our site with your friends, family, and all your connections on social media. You can do this easily with the social media buttons located right below this paragraph. Like us on Facebook, follow us on Twitter, add us on Google Plus, Tumbler, Linked In, Pintrest, Stumble Upon, Reddit, or other social media sites that you use. You can also sign up for our email service and have new posts and podcast episodes delivered right to your inbox the moment they’re available online. That form is located to the right of this text. We’re also on iTunes, Stitcher and Poddirectory as a free subscription, and if you have a moment, please write a review about our podcast on either of those sites. Anything you can do to help spread the word about Special Parents Confidential will help us be able to continue these podcasts.
Thanks for your support!

Special Parents Confidential Episode 28 The Mighty

The Mighty. 

Once in a while you come across a website that is just so compelling, so useful, and so helpful that you have to share it with everyone you know.

Thirty million people have done that with The Mighty. 

After finding out that his daughter had a rare genetic disorder, and his son was born with a health challenge, the founder of The Mighty, Mike Porath, decided to build a website where people could share their emotional struggles and help each other. As he says in his own article on why he started The Mighty, “Stories that inspire people – that can change the path of someone’s day, as my wife says – are a great start, but we are going after much more. Ultimately we want to improve the lives of people facing disease, disorder and disability.”

The Mighty started out as a site where parents of special needs children can vent their frustrations, post their triumphs, and share with each other their experiences. They’ve grown beyond special needs to health challenges, and even posts written by people with special needs and health challenges who offer their own unique perspectives.

In this episode we talk to Mike Porath about The Mighty and how he brought the website together. He also talks about where he hopes to see The Mighty go in the coming years, and what he wants the site to become. It’s a fascinating story and a fascinating interview with a real visionary who just started off by asking a question: “What can we do about this?”

Below are some links to various articles on The Mighty that were mentioned in the podcast.

Mike Porath’s Current Favorite Story On The Mighty

The Mother Who’s Son With Autism Got A Special Invitation To A Party

The Man Who Invented A Font To Help People With Dyslexia

As always a reminder that if you like this episode of Special Parents Confidential or any episode we’ve done, please share our site with your friends, family, and all your connections on social media. You can do this easily with the social media buttons located right below this paragraph. Like us on Facebook, follow us on Twitter, add us on Google Plus, Tumbler, Linked In, Pintrest, Stumble Upon, Reddit, or other social media sites that you use. You can also sign up for our email service and have new posts and podcast episodes delivered right to your inbox the moment they’re available online. That form is located to the right of this text. We’re also on iTunes and Stitcher as a free subscription and if you have a moment, feel free to write a review about our podcast on either of those sites. Anything you can do to help spread the word about Special Parents Confidential will help us be able to continue these podcasts.
Thanks for your support!

Special Parents Confidential Episode 26 Parent Problems

Parent Problems

Parents of special needs children face problems that few others can understand. Extraordinary  joy and crushing despair, sometimes in the same day, the same hour, the same moment. One thing is true, people who relate the best to these moments are other parents of special needs children. We have a bond that, while often unspoken, is a shared knowledge that ‘this is our life’ and we all know exactly what it’s like.

For those who are just starting out on their journey with a special needs child, the fear and uncertainty can be very daunting. How do you cope? Where do you look for help? Who can you trust? And possibly the most important question of all, who understands what this means?

To help answer those questions, Donna Kirk has returned for another interview episode. Donna was my guest in Special Parents Confidential Episode 23, in which she talked about her book, Finding Matthew, the story of her son who was born with severe brain damage. She and her husband, Ed, experienced everything a parent of a special needs child could face. A terrible life-altering diagnosis, years and years of therapies, trying to find help for their son, watching him struggle into adulthood, and finally facing the hardest loss of all, the death of their special needs child.

After we finished the interview for that episode, Donna contacted me again and asked if she could talk about the lessons she learned and how they might help parents who are currently struggling and trying to cope with the emotional rollercoaster that raising a special needs child can cause. Top of the list for any parent, honesty and communication.

For more resources on specific issues, check out our Helpful Links page.

As always a reminder that if you like this episode of Special Parents Confidential or any episode we’ve done, please share our site with your friends, family, and all your connections on social media. You can do this easily with the social media buttons located on this page. Like us on Facebook, follow us on Twitter, add us on Google Plus, Tumbler, Linked In, Pintrest, Stumble Upon, Reddit, or other social media sites that you use. You can also sign up for our email service and have new posts and podcast episodes delivered right to your inbox the moment they’re available online. You’ll find the form to do that to the right of this posting. We’re also on iTunes, Stitcher, and Poddirectory as a free subscription and if you have a moment, feel free to write a review about our podcast there. Anything you can do to help spread the word about Special Parents Confidential will help us be able to continue these podcasts.

Special Parents Confidential Episode 25 Early Intervention

Early Intervention.

There’s probably nothing more nerve-wracking and stressful for any parent than the realization that your new baby, your toddler, your child might have some problems. Whether it’s not speaking, not walking, or not engaging socially like other kids, the hardest question many parents face is, what do I do about this?

Of course friends and relatives will tell you, oh it’s alright, that’s just how some boys or some girls are… and they’ll grow out of it. But that’s not always the best advice, and if  your child does have a developmental delay or a learning disorder, they are simply not going to grow out of it. They need help. And then the question becomes, where do I get that help?

Our guest on this episode of Special Parents Confidential can answer a lot of those questions. Barbara Corbin is the Early On Coordinator with the Kent Intermediate School District in Kent County, Michigan.  She handles Early Intervention, and Early Childhood Special Education with school districts. She helps parents get their first diagnosis and coordinates getting help for children right at the very beginning. Thanks to advances in medical research and therapies, children can be diagnosed very early, and Early On programs can start at age two.

Links to websites mentioned in the podcast:

1800EarlyOn Early Intervention information for Michigan, with links to other States. The website name is also their toll free phone number: 1 800 Early On.

The Arc of Kent County Information resource for people with intellectual and developmental delays.

Center For Disease Control (CDC) Page for Parents and Infants This page has the Milestones and Schedules information to track expected progress for infants and toddlers.

Great Starts Collaborative Early Intervention Page Success Starts Early’s webpage on Early Interventions. The entire site is full of helpful information for all parents.

Pathways.org  Free online resource and tools for parents.

The Early Childhood Technical Assistance Center Online resource tools for families of children with special needs.

Michigan Alliance for Families.  Provides information, support, and education for families who have children (birth through 26 years of age) who receive (or may be eligible to receive) special education services.

Special Parents Confidential Episode 23 Finding Matthew

Finding Matthew

For parents of special needs children perhaps the most stressful and anxious time is when you are first told that your child has problems. That first diagnosis is such a shock. You don’t know what to do, you don’t know what to think, and you feel completely overwhelmed with it all. One of the most helpful things for parents of special needs children is when they hear stories of other families who have already gone through similar experiences and have shared their story. The challenges and struggles are universal, no matter what the disability or the severity. Just knowing that someone else is out there facing the same worries and fears, and has taken the time to tell that story, can be very reassuring.

In this episode of Special Parents Confidential I’d like to introduce you to just such a parent. In 1970, Donna Kirk, who, with her husband Ed, is from a town near Toronto, Canada, had gone to the hospital for the birth of her first son, Matthew. But problems occurred and their baby had oxygen loss during birth and suffered severe brain damage. The next day their son was transferred to Sick Kids Hospital in Toronto where the doctor there told them that their son was basically, in his words, “a vegetable with a heartbeat”. This doctor advised them to institutionalize their son and have another baby as soon as possible… implying that they should just forget Matthew.

Donna and Ed ignored what the doctor told them and took him home as soon as they could. They fought for him and cared for him throughout his entire life and, in the process, proved that first doctor and many other people wrong about Matthew’s abilities. Ed and Donna had two other children after Matthew, a brother an sister.  Matthew died at the age of 40 in 2010, and Donna has written a book called, Finding Matthew, about his life, his challenges, and the struggles that she and her husband went through from his devastating diagnosis to his ultimately successful life and becoming a contributing member to society. The book shows how even the most severely disabled people have incredible gifts and how the family can work together to get through any adversity. It’s definitely a must-read for all parents of special needs children and their families.

Donna’s extraordinary book, Finding Matthew is available on Amazon Books, and you an click either of those links to take you  to the page. Donna Kirk also has a blog site where she posts resource information and updates. Just click on her name and you’ll be re-directed to her site.

As always, a reminder that if you like this episode of Special Parents Confidential or any episode we’ve done, please share our site with your friends, family, and all your connections on social media. You can do this easily with the social media buttons on our website. Like us on Facebook, follow us on Twitter, add us on Google Plus, Tumbler, Linked In, Pintrest, Stumble Upon, Reddit, or other social media sites you use. You can also sign up for our email service and have new posts and podcast episodes delivered right to your inbox the moment they’re available online. We’re also on iTunes and Stitcher as a free subscription, and if you have a moment, feel free to write a review about our podcast. Anything you can do to help spread the word about Special Parents Confidential will help us be able to continue these podcasts.

Special Parents Confidential Episode 21 IEPs and the Law

IEPs and the Law.

Individualized Education Plans. IEPs for short. Possibly one of the most stressful times for parents of special needs children. IEP meetings are those annual events when parents meet with schools to plan out the kinds of help and services their special needs children are going to receive for the next school year.

IEP meetings are very long, sometimes taking two hours or more, and usually filled with terminology that can sometimes be overwhelming. Parents are expected to understand a huge amount of information and make decisions on what kind of educational support their child will receive in the next grade year. The problem is for many of us, we don’t even know how our kids are going to do from week to week, much less three or four months later, after the entire summer break.

Typically the schools bring in the teacher, the special education teacher, any school therapists, the school social worker, and the Principal or Vice Principal of the school. Sometimes the school or district psychologist will attend, sometimes the district’s Director of Special Education will also attend. There can be as many as ten to fifteen people representing the school in these meetings. It is very easy for parents to feel ‘ganged up on’ or intimidated, especially when there is often only one or two parents in the room.

This is where Attorney Advocates can help. Lawyers who work in special education advocacy and mediation are trained in all areas of special education law. They can be the parent’s voice in the room and they know exactly what the laws are in what the school should be doing for your child and whether your concerns are being addressed.

Our guest on this episode of Special Parents Confidential is Attorney Randi Rothberg who’s firm, Thivierge & Rothberg is a Special Education Law Firm based in New York City. She and her partner, Christina Thivierge focus exclusively on representing families of children with special needs, including attending IEP meetings, mediation, Due Process, and, when necessary, litigation in the State and/or Federal Courts. She talks about some of the problems that can arise when parents face an IEP meeting, how to prepare for those meetings, what to watch out for when you’re faced with things you don’t agree with in an IEP, and how to look for an advocate in your area. Randi also does advocacy work for issues of bullying in schools and discusses addressing those situations.

LEGAL DISCLAIMER:

Some of the legal issues Randi discusses are general, however some points, such as the “Parent Member in IEP meetings” are specific to New York State and may not apply in your State, or Country. Please consult a Special Education and Disability Law Attorney or Special Education Advocate in your area for complete information on your State laws and your rights.

Here are the links mentioned in the podcast:

Thivierge & Rothberg PC – Representing children and adolescents with disabilities in New York & New Jersey

COPPA – Council of Parent Attorneys and Advocates

Wrights Law – Special Education Law and Advocacy

As always a reminder that if you like this episode of Special Parents Confidential or any episode we’ve done, please share our site with your friends, family, and all your connections on social media. You can do this easily with the social media buttons located right below this paragraph. Like us on Facebook, follow us on Twitter, add us on Google Plus, or any of the other sites like Tumbler, Linked In, Pintrest, Stumble Upon, Reddit, and others. You can also sign up for our email service and have new posts and podcast episodes delivered right to your inbox the moment they’re available online. That form is located to the right of this text.  We’re also on iTunes and Stitcher and if you have a moment, feel free to write a review about our podcast there. Anything you can do to help spread the word about Special Parents Confidential will help us be able to continue these podcasts.

Thanks for your support!

Special Parents Confidential Episode 20 Health and Wellness

Health and Wellness.

Perhaps no other subject is a greater concern to a parent than the health of their children. Parents of special needs children have an even greater concern because our kids often have disabilities or disorders that require specialized health care options. Some disabilities or disorders like Downs Syndrome can be diagnosed immediately at birth, if not sooner. Others like Autism or Dyslexia may take a few years. However, the one thing all health care professionals can agree on is the earlier you get a diagnosis for your child, the sooner you can get the right treatments and therapies, and that’s better for your child.

But where do you find the experts on your child’s disabilities or disorders, especially if you’re a first time parent and don’t yet have a family doctor or pediatrician? Often, a child can have more than one special need challenge, which can make medical decisions even harder. 

One place that offers a wide variety of services from medical checkups and advice to doctor referrals to support groups and beyond is your local county or city Health Department. Most Health Departments have a person or a group of people who support parents of special needs children with counseling, advice, and education. They can help you with ongoing support, including finding early on or early intervention programs with your local school district to get your child into special education programs that are the right fit for their challenges.

In this episode of Special Parents Confidential, John talks to Chris Buczek, RN BSN, who is the Public Health Program supervisor for Children’s Special Health Care Services of the Kent County Health Department in Grand Rapids Michigan. She also supervises the Hearing and Vision Screening Program for the Health Department, and runs a support group for parents of special needs children. And, as you’ll find out, she has a personal reason for her involvement in Special Health Services.

During the interview Chris talks about a number of websites for resources. The following are the links to those sites:

MDCH Children’s Special Health Care Services   

MI Family Center for Children and Youth with Special Health Care Needs

US DHHS HRSA Maternal and Child Health

CDC Parent Information Infants & Toddlers

CDC Important Milestones For Infants

NCMHI Children and Youth with Special Health Care Needs

American Academy of Pediatrics Bright Futures Page

As always a reminder that if you like this episode of Special Parents Confidential or any episode we’ve done, please share our site with your friends, family, and all your connections on social media. You can do this easily with the social media buttons located right below this paragraph. Like us on Facebook, follow us on Twitter, add us on Google Plus, or any of the other sites like Tumbler, Linked In, Pintrest, Stumble Upon, Reddit, and others. You can also sign up for our email service and have new posts and podcast episodes delivered right to your inbox the moment they’re available online. That form is located to the right of this text.  We’re also on iTunes and Stitcher and if you have a moment, feel free to write a review about our podcast there. Anything you can do to help spread the word about Special Parents Confidential will help us be able to continue these podcasts.

Thanks for your support!

The Numbers Are In!

The Numbers Are In!

When I started this podcast a little over two years ago I was hoping to be able to fill a need for parents or relatives or friends of special needs children and adults. I had no idea how many people would be interested, but I thought there would be ‘some’.

Until now I really had no idea how many people have seen the Special Parents Confidential website, or how many people were listening to the podcast episodes. We don’t have a large number of subscribers on iTunes… this is primarily owing to the fact that the file size for each episode is very large. My crazy insistence on having the sound quality as good as any FM radio station is the cause. Due to these large file sizes, it’s my belief that most of the audience is listening directly on the website rather than downloading the episodes.

Well now I have a better idea of just how many people have been checking out this ‘humble little podcast’. My webmaster guru recently ran a site stat report for me, and I wanted to share some of it here. The report contains large numbers of stats including activity, access, visitors, referrers, browsers, and errors (bots trying to gain access to stuff they’re not supposed to have – don’t worry they didn’t get anything). The numbers are in, and very detailed, so I’ll just post the two most important stats: Since we started in in January of 2013 until April 23 of 2015 (the date the report was generated), Special Parents Confidential has been visited 815,493 times; with 600,882 real people hits and 214,611 spider (bot) hits. More impressively, the total bandwidth usage has been 49.45 GBs. In radio terms, that’s (TSL) Time Spent Listening. This number represents both episode downloads and direct listening time.

Pronouncing the words, “I’m shocked” is a major understatement. I think the phrase, ‘my brain did backflips’ is more appropriate. These are far bigger numbers than I ever expected, or thought possible, given that I haven’t really gone out of my way to promote the site.
To everyone who has visited, listens, and continues to do both, thank you so very much! It’s gratifying to know there are so many more of you than I thought. You have my assurances that I’ll continue to produce episodes that cover subjects you want to know about. You should also know that you have a voice in this process too. Please like our Facebook page or Follow us on Twitter so you can comment directly on each episode (we monitor those the most frequently)*. Also feel free to share episodes and the website on your favorite social media sites.
Thanks!

John

PS- if you’re interested in sponsoring or advertising on our podcast or this website, please use our Contact Page, and I’ll send you a more detailed version of the stat report and we can talk things over.

*We use Facebook and Twitter for podcast comments, rather than a webpage ‘comments section’ in order to reduce spammer advertising.

New Episodes Coming Soon

New Episodes Coming Soon.

We’re working on more interviews in the next few weeks. Some of the subjects we’re covering:

Did you know Dyslexia is only recognized in 24 states as a learning disability, with specific definitions and guidelines for special education? We’re doing  two episodes devoted to living with Dyslexia. We will be talking to an elementary school teacher who has Dyslexia to learn how she dealt with Dyslexia while growing up and how she now teaches. We’re also going to talk to a mother and son (the son has Dyslexia) who are working together on trying to get Dyslexia recognized as a learning disability in their state and other states.

We’re also going to talk to an RN with our local health department for medical advice and health issues that are important for special needs children and adults.

Be sure to subscribe to our social media pages, we’re on Facebook, Twitter, Google Plus, Linked In, and others where you can comment and give us suggestions for future episodes! Don’t forget you can subscribe to our email list, and find our podcast on iTunes and Stitcher.

We’re working on some big plans for this year to make Special Parents Confidential even better, so be sure to connect with us for all the news and updates as we go!

Finally, be sure to share our site with your friends and family. You never know who might be interested or have a need to know something we have here. We do these podcasts for you and your help in spreading the word is what keeps us going!

Thank you for your support!

John

Special Parents Confidential 17 When Schools Say ‘No’

Special Parents Confidential Episode 17 When Schools Say ‘No’.

In 1990 Congress passed IDEA, or Individuals with Disabilities Education Act, which entitles each student with a disability to a free appropriate public education (FAPE) to meet his or her unique needs. Originally titled Education for All Handicapped Children Act of 1975 (EAHCA), it was based on Congress’ finding that the millions of children with disabilities had educational needs which were not being met due to a lack of services and inappropriate public school placement. IDEA set down guidelines for how schools and states were to implement special education procedures.

Unfortunately, there is a wide disparity across states as to how those guidelines should be implemented, or even interpreted. Similarly, school districts can even have differing standards for services they offer in special education. Simply put, IDEA allowed States and schools a lot of leeway in special education implementation, based on numerous issues including need, population, local economic factors, and other considerations.

The problem for parents is, this leeway in the implementation of procedures can sometimes allow States and school districts to restrict or even deny extra help for students who don’t fit the exact definition of a particular disability or learning disorder. School Districts and States are also cutting certain aspects of special education support from Education budgets as cost-saving measures. While districts and States aren’t outright eliminating Special Education, they do cut budgets for support programs, assistant teachers or para-pros who help in the classrooms, and other accommodations. The result is many parents are finding out that their children will perhaps get minimal help (the least allowed under regulations), but more often than not they hear the word ‘no’ when asking for additional help or support for their child.

So what can you do when your school or State says ‘no’?

Our guest in this episode has some answers. Suzanne Wilcox is the co-owner of Hope Educational Consulting, LLC a special education advocacy service based in Ohio and Michigan. She is also the mother of four children, two of whom needed special education support in school.  She explains how IDEA works, and how schools and states interpret those regulations. She also explains how ‘best practices’ can sometimes be overlooked due to budgeting, or availability issues.

During the time when she and her family lived in Ohio, she and her partners were instrumental in creating and passing legislation that allowed Ohio to become one of the first States in the country to recognize Dyslexia as a learning disability, and implemented official regulations on the kinds of therapies schools must offer to help students with Dyslexia. She has worked with parents, teachers, school districts, and legislators on numerous issues with special education.

Suzanne offers some great advice and information that all parents of special needs children need to know.  Please feel free to share this episode with everyone you know who has a child with special needs or works with children who have special needs.

* Note: first paragraph attribution to Wikipedia article on IDEA, Individuals with Disabilities Education Act. For more information on IDEA, visit http://idea.ed.gov

As always a reminder that if you like this episode of Special Parents Confidential or any episode we’ve done, please share our site with your friends, family, and all your connections on social media. You can do this easily with the social media buttons located right below this paragraph. Like us on Facebook, follow us on Twitter, add us on Google Plus, or any of the other sites like Tumbler, Linked In, Pintrest, Stumble Upon, Reddit, and others. You can also sign up for our email service and have new posts and podcast episodes delivered right to your inbox the moment they’re available online. That form is located to the right of this text.  We’re also on iTunes and Stitcher and if you have a moment, feel free to write a review about our podcast there. Anything you can do to help spread the word about Special Parents Confidential will help us be able to continue these podcasts.

Thanks for your support!

New Findings On Dyslexia

New Findings On Dyslexia.

Hello!

We heard an interesting report on the NPR program, Here & Now, entitled, “I’m Not Stupid, Just Dyslexic”. The program discussed problems children have with dyslexia in school and how it can cause a lifetime of difficulties.

Neurologists are discovering the physical link in the brain that can cause dyslexia, and they’re hoping to use this research to diagnose the condition in early infancy so that children with dyslexia can get the help they need before kindergarten. Typically children are not diagnosed with dyslexia until the third grade at the earliest, which means they’re far behind by the time they start getting help.

The report is just under eight minutes long. We recommend listening to it, downloading the show so that you can review information, and sharing with everyone you know. Dyslexia can be present even with other disabilities and because of this it can sometimes be missed or undiagnosed.

Here’s the link to the program: I’m Not Stupid, Just Dyslexic