Monthly Archives: October 2018

Special Parents Confidential 64 5p Syndrome aka Cri du Chat

5p Syndrome aka Cri du Chat.

Cri du Chat, aka 5p Syndrome is a chromosomal deletion disorder resulting in a wide spectrum of intellectual and developmental abilities. Each year in the United States, approximately 50 to 60 children are born with Cri du Chat, or 5p Syndrome. These individuals will likely need a lifetime of support. Parents who have children born with this rare disability are usually given a very grim prognosis. In many cases they are told that their child will never speak, never walk, and not be able to accomplish much of anything.

Defying Expectations.

But, as often is the case, many children with Cri du Chat go on to have remarkable breakthroughs and are able to overcome a lot of these challenges. New therapies and treatments along with improved technology has allowed many kids to exceed and succeed far better than anyone expected.

Loving You Big 

Like most people, I was unaware of Cri du Chat, until I was contacted by Leah Moore, who writes the blog, Loving You Big. Her daughter Jordan, now age 7, was born with Cri du Chat, and Leah’s blog has some remarkable stories of how her family’s life goes on with a child who has such challenges, but also such amazing gifts. Leah is a high school English teacher in the New York City area, and can’t help but find the irony of her life, as she says, “in love with words”, yet now faced with a daughter who struggles so hard to speak. She also talks about coping with her emotions and that she now also has two twin sons who bring their own set of issues. It’s a story that many parents of special needs kids can relate to.

Links mentioned in the podcast:

Leah’s 3 favorite posts from her blog:

The Irony of Language.  

Yes My Hands Are Full.

Welcome To The World, Baby Girl.

Video of Leah and her husband Zac, and their daughter Jordan.

Resources:

5p Minus Society. 

The Danger of a Single Story – Ted Talk by Chimamanda Ngozi Adichie.  

Reminder.

Please help spread the word about Special Parents Confidential. Use the social media buttons located on this page to post our podcast to all of your favorite social media platforms.

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Special Parents Confidential is now available on Spotify! Just follow the link here to subscribe to our podcast for free.

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Special Parents Confidential 63 Inclusive Education Project

Inclusive Education Project.

The Inclusive Education Project is a non-profit charity, founded by two special education lawyers, Amanda Selogie and Vickie Brett. It’s also the name of the podcast they both host that deals with subjects on special education law and advice.

Special Education Lawyers.

Amanda and Vickie started the Inclusive Education Project to, in their words, “Level the playing field” for families in California. As we all know, getting help for our kids in school can be very frustrating. The system is full of legal jargon and terminology that can be difficult to navigate. When you add to that the fact that many people simply cannot afford to hire an attorney to help them, you’ve got a lot of kids falling through the cracks and not getting the help they need.

Legal Help For Everyone.

Using their podcast, Amanda and Vickie are offering legal advice for special needs parents. They also offer workshops for parents, and pro bono legal help. As they say on their website: “Disability rights is the next frontier in civil rights. We believe education is the key to building an inclusive society and ensuring that all students are given an equal opportunity.”

Links Mentioned In The Podcast:

Inclusive Education Project  

Inclusive Education Project Podcast

Inclusive Education Project Facebook Page

Reminder.

Please help spread the word about Special Parents Confidential. Use the social media buttons located on this page to post our podcast to all of your favorite social media platforms.

A great way to get in touch with us and comment about episodes you’ve listen to is on our Facebook Page. Please “like” the page and tell us what you think. You can even suggest topics for upcoming episodes and ask questions about previous shows.

Special Parents Confidential is now available on Spotify! Just follow the link here to subscribe to our podcast for free.

Thanks for your support!

Podcast: Play in new window | Download

Subscribe: RSS

Special Parents Confidential Now On Spotify

Special Parents Confidential Now On Spotify

We are pleased to announce that you can now listen to Special Parents Confidential on Spotify.

Follow any of the links in this text to find out Spotify listing and subscribe to SPC.

Or, use the Spotify button on our new social media listings on the right side of the main page of our website.

We’re now able to add Spotify to our list of other social media subscriptions including iTunes, Google Play, Stitcher, TuneIn, PodDirectory, BluBrry, Tumbler, LinkedIn, Twitter, and Facebook.

We’re working on getting SPC listed on more audio services, and we’ll continue to update our availability as we go.

Thanks for all your continued support! Be sure to share SPC with all of your favorite social media sites. Just use the social media buttons at the bottom of this posting, as well as on the right side of our home page.

New Episodes Coming Soon!

We’re working on some new episodes of SPC that will be posted soon.

Additionally, we’re planning to start a series of episodes on the Americans with Disabilities Act. We’ll take a close look at how and why the Act was written and passed in 1990, and the ADA Amendment Act of 2008. We’ll go through each part of the Act and talk about what it covers, how the laws work, and we’ll try to dispel some of the common misconceptions about ADA and how it affects businesses, education, and public life.

We think this will be a great series, and hope you’ll find it worthwhile.

Make sure you subscribe to us on Spotify, or any other audio service site we’re listed on, so that you won’t miss a single episode!  And be sure to write reviews for our episodes on those subscription service sites as well, to help spread the word about SPC.

Thanks for listening!